West of Scotland Adult CF Unit, Queen Elizabeth University Hospital, Glasgow, UK.
Physiother Theory Pract. 2024 Jul;40(7):1609-1615. doi: 10.1080/09593985.2023.2182654. Epub 2023 Feb 21.
Increasing physical activity in people with Cystic Fibrosis (pwCF) can positively influence their physical and mental wellbeing. Online activities provide opportunity for outpatient CF populations to enhance physical activity.
PwCF within a large Scottish CF unit were invited to participate in a pilot study of online exercise and education sessions. Those participating shared opinions on motivation, fitness habits, types of activities enjoyed pre and during shielding, and desirable goals for online activity. Subsequently, an online activity timetable was created offering daily exercise classes. Educational presentations driven by patient request were delivered in context appropriate to health, wellbeing, and infection control needs during the pandemic and the advent of modulator therapies. Twenty-eight group exercise sessions and 12 educational sessions occurred over the six-week pilot, following which, a post-pilot questionnaire was sent to those who had participated in the sessions. Risk assessment and exercise modifications ensured safe practice and accommodation for all levels of respiratory disease.
Twenty-six pwCF attended one or more exercise sessions and 37 pwCF attended one or more education sessions. Group exercise and education improved time efficiency compared to in-person face-to-face delivery. The post-pilot questionnaire demonstrated increases in motivation and perceived fitness, with positive comments regarding peer support and enhanced socialization. Personal fitness goals were fully or partially achieved by 91% of participants.
Patient feedback suggested the implementation of online exercise and education sessions for pwCF was a satisfactory and convenient way to deliver exercise allowing for optimization and progression of personal goals.
增加囊性纤维化（pwCF）患者的身体活动可以积极影响他们的身心健康。在线活动为门诊 CF 人群提供了增强身体活动的机会。
邀请苏格兰大型 CF 单位的 pwCF 参加一项在线运动和教育课程的试点研究。参与的人分享了关于动机、健身习惯、在屏蔽前和屏蔽期间喜欢的活动类型以及在线活动的理想目标的意见。随后，创建了一个在线活动时间表，提供每日锻炼课程。根据健康、幸福感和感染控制的需求，以及大流行和调节剂治疗的出现，以患者要求为动力的教育演示在适当的背景下提供。在六周的试点之后，进行了 28 次团体锻炼课程和 12 次教育课程，之后向参加过课程的人发送了一份试点后调查问卷。风险评估和运动修改确保了所有呼吸疾病水平的安全实践和适应。
26 名 pwCF 参加了一次或多次锻炼课程，37 名 pwCF 参加了一次或多次教育课程。与面对面的面对面授课相比，团体锻炼和教育提高了时间效率。试点后的问卷调查显示，动机和感知健身能力有所提高，对同伴支持和增强社交的积极评价。91%的参与者完全或部分实现了个人健身目标。
患者反馈表明，为 pwCF 实施在线运动和教育课程是一种令人满意和方便的运动方式，可以优化和推进个人目标。
