Department of Pediatric Pulmonology, Cystic Fibrosis Center, University Children's Hospital of Ruhr University Bochum at St. Josef-Hospital, 44791 Bochum, Germany.
Pediatric Pulmonology and Sleep Medicine, Cystic Fibrosis Center, Children's Hospital, University of Duisburg-Essen, 45117 Essen, Germany.
Int J Environ Res Public Health. 2022 Oct 13;19(20):13150. doi: 10.3390/ijerph192013150.
Nowadays physical activity (PA)/exercise is an important component of cystic fibrosis (CF) therapy. The aim of the study was to assess the barriers to PA and the barrier management and to explore the effect of supervision on the barriers and barrier management during an exercise program.
In total, 88 people with CF (pwCF) of the ages 6 to 50 years old (mean 24.2 ± 7.9 yrs) participated in the partially supervised 12-month exercise program and filled in a structured and validated questionnaire about barriers to sports and barrier management at baseline. Additionally, 23 pwCF filled in the questionnaire after 6 months and 12 months. The items were clustered into physical and psychosocial barriers and into preventive counter strategies and situational counter strategies and analyzed at baseline and over time.
Physical barriers were more relevant than psychosocial barriers and no trend could be seen in the situational and preventive counter strategies. When divided in subgroups, the less active pwCF (<7500 steps/day), more active pwCF (>7500 steps/day), physical barriers, and psychosocial barriers showed no significant differences. However physical barriers showed a tendency to have a higher value in the less active group compared to the more active group ( > 0.05). Stratified by age or FEV1%pred between the subgroups, no differences could be seen regarding barriers and counter strategies.
Physical barriers seemed to have a higher priority when it comes to not participating in PA/exercise. Supervision over 6 months during an exercise program did not show a beneficial effect on barriers and barrier management. Besides the motivational aspect of sport counselling, the volitional aspect seemed to be more important to incorporate more PA into daily life. Individual barriers and their concrete counter strategies should be discussed with the patient with CF. Sport counselling is needed permanently and should be part of the CF routine care.
如今，体力活动（PA）/运动是囊性纤维化（CF）治疗的重要组成部分。本研究旨在评估 PA 障碍、障碍管理，并探讨监督对运动计划中障碍和障碍管理的影响。
共有 88 名年龄在 6 至 50 岁（平均 24.2±7.9 岁）的 CF 患者（pwCF）参加了部分监督的 12 个月运动计划，并在基线时填写了一份关于运动障碍和障碍管理的结构化和验证问卷。此外，23 名 pwCF 在 6 个月和 12 个月后填写了问卷。这些项目被聚类为身体和心理社会障碍，以及预防对策和情境对策，并在基线和随访期间进行分析。
身体障碍比心理社会障碍更相关，情境和预防对策没有趋势。当分为亚组时，不活跃的 pwCF（<7500 步/天）、活跃的 pwCF（>7500 步/天）、身体障碍和心理社会障碍没有显著差异。然而，与活跃组相比，不活跃组的身体障碍值更高（>0.05）。按年龄或 FEV1%pred 在亚组之间分层，障碍和对策方面没有差异。
在不参与 PA/运动方面，身体障碍似乎更优先考虑。在运动计划中进行 6 个月的监督并没有显示出对障碍和障碍管理的有益影响。除了运动咨询的动机方面，意志方面似乎更重要，需要将更多的 PA 纳入日常生活中。应与 CF 患者讨论个体障碍及其具体对策。运动咨询需要长期进行，应成为 CF 常规护理的一部分。
