了解2019冠状病毒病对慢性淋巴细胞白血病（CLL）护理及相关资源需求的影响。
Understanding the Impact of COVID-19 on Chronic Lymphocytic Leukemia (CLL) Caregiving and Related Resource Needs.
作者信息
Bagautdinova Diliara, Bacharz Kelsey C, Bylund Carma L, Sae-Hau Maria, Weiss Elisa S, Rajotte Michelle, Lincoln Greg, Vasquez Taylor S, Parker Naomi D, Wright Kevin B, Fisher Carla L
机构信息
Department of Advertising, College of Journalism and Communications, University of Florida, Gainesville, FL 32611, USA.
Department of Clinical & Health Psychology, College of Public Health & Health Professions, University of Florida, Gainesville, FL 32610, USA.
出版信息
J Clin Med. 2023 Feb 18;12(4):1648. doi: 10.3390/jcm12041648.
Chronic lymphocytic leukemia (CLL) caregivers play a central role in disease management-a role that has been heightened during the COVID-19 pandemic given the healthcare system's reliance on frontline family caregivers and CLL patients' increased risk of infection and mortality. Using a mixed-method design, we investigated the impact of the pandemic on CLL caregivers (Aim 1) and their perceived resource needs (Aim 2): 575 CLL caregivers responded to an online survey; 12 spousal CLL caregivers were interviewed. Two open-ended survey items were thematically analyzed and compared with interview findings. Aim 1 results showed that two years into the pandemic, CLL caregivers continue to struggle with . Caregivers described experiencing , and . Aim 2 results indicate that CLL caregivers needed and . Findings illustrate ongoing challenges facing CLL caregivers and provide an agenda to better support the caregivers of this vulnerable population during the COVID-19 pandemic.
慢性淋巴细胞白血病（CLL）患者的照料者在疾病管理中发挥着核心作用——鉴于医疗保健系统对一线家庭照料者的依赖以及CLL患者感染和死亡风险的增加，这一角色在新冠疫情期间变得更加重要。我们采用混合方法设计，调查了疫情对CLL患者照料者的影响（目标1）及其感知到的资源需求（目标2）：575名CLL患者照料者回复了一项在线调查；对12名配偶CLL患者照料者进行了访谈。对两项开放式调查项目进行了主题分析，并与访谈结果进行了比较。目标1的结果表明，在疫情爆发两年后，CLL患者照料者仍在苦苦挣扎。照料者描述了经历的……，以及……。目标2的结果表明，CLL患者照料者需要……和……。研究结果说明了CLL患者照料者面临的持续挑战，并提供了一个议程，以便在新冠疫情期间更好地支持这一弱势群体的照料者。
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