Mohammadi Fateme, Zahra Masoumi Seyedeh, Oshvandi Khodayar, Bijani Mostafa, Nikrouz Leila
Chronic Diseases (Home Care) Research Center and Autism Spectrum Disorders Research Center, Department of Nursing, Hamedan University of Medical Sciences, Hamedan, Iran.
Department of Midwifery, School of Nursing and Midwifery, Mother and Child Care Research Center, Hamadan University of Medical Sciences, Hamedan, Iran.
Front Psychol. 2023 Feb 10;14:1057003. doi: 10.3389/fpsyg.2023.1057003. eCollection 2023.
Adolescents in the end stages of life impose a lot of psychological stress on other family members, which may affect their resilience and quality of life. So, the aim of the present study was to investigate death anxiety, family adaptability and cohesion, and resilience in the parents of children and adolescents who were at the end stages of life.
This is a cross-sectional study. Two hundred and ten parents were selected by convenience sampling and completed the questionnaires such as demographics survey, the death anxiety scale, Connor-Davidson resilience scale, family adaptability, and cohesion scale. Data were analyzed by descriptive statistics (frequency, percentage, mean, and standard deviation), independent -test, ANOVA, and multiple linear regressions. The significance level was set at < 0.05.
The findings showed that death anxiety in parents of children and adolescents in the end stages of life has a significant inverse correlation with family adaptability and cohesion ( < 0.001, = -0.92) and resilience ( < 0.001, = -0.90). The variables of family adaptability and cohesion, resilience, number of children, the children's illness duration, and marital status can predict 61.34% of the death anxiety variance in these parents.
The parents of children and adolescents in end stages of life reported high death anxiety and moderate family adaptability and cohesion, but low resilience. Accordingly, pediatric nurses and healthcare policymakers should develop comprehensive support plans for these parents to facilitate their adaptation and increase their family adaptability and cohesion.
处于生命末期的青少年会给其他家庭成员带来很大的心理压力，这可能会影响他们的心理韧性和生活质量。因此，本研究的目的是调查处于生命末期的儿童和青少年的父母的死亡焦虑、家庭适应性和凝聚力以及心理韧性。
这是一项横断面研究。通过便利抽样选取了210名父母，并让他们完成了人口统计学调查、死亡焦虑量表、康纳-戴维森心理韧性量表、家庭适应性和凝聚力量表等问卷。数据采用描述性统计（频率、百分比、均值和标准差）、独立样本t检验、方差分析和多元线性回归进行分析。显著性水平设定为<0.05。
研究结果表明，处于生命末期的儿童和青少年的父母的死亡焦虑与家庭适应性和凝聚力（<0.001，r=-0.92）以及心理韧性（<0.001，r=-0.90）呈显著负相关。家庭适应性和凝聚力、心理韧性、子女数量、子女患病时长和婚姻状况等变量可以预测这些父母死亡焦虑变异的61.34%。
处于生命末期的儿童和青少年的父母报告了较高的死亡焦虑、中等程度的家庭适应性和凝聚力，但心理韧性较低。因此，儿科护士和医疗保健政策制定者应为这些父母制定全面的支持计划，以促进他们的适应并提高他们的家庭适应性和凝聚力。
