Holtzman Sharonne, Carr Caitlin, Zeligs Kristen, Blank Stephanie V
Icahn School of Medicine at the Mount Sinai Hospital, United States.
Gynecol Oncol Rep. 2023 Jan 31;46:101143. doi: 10.1016/j.gore.2023.101143. eCollection 2023 Apr.
Social media outlets have increased in popularity within the last decade and are influencing the ways in which patients interact with the healthcare system. The objective of this study is to examine the presence of gynecologic oncology divisions on Instagram and to analyze the content of their posts. Secondary objectives included examining and analyzing the use of Instagram as a tool for patient education among people at increased genetic risk of gynecologic cancers. Seventy-one NCI-Designated Cancer Centers, their gynecologic oncology divisions and hereditary gynecologic cancer related posts were searched on Instagram. Content was reviewed and authorship was analyzed. Of the 71 NCI-designated Cancer Centers, 29 (40.8 %) had Instagram accounts, whereas, four (6 %) gynecologic oncology divisions had Instagram accounts. The search of the seven most common gynecologic oncology genetic terms yielded 126,750 posts with the majority under BRCA1(n = 56,900) and BRCA2 (n = 45,000) followed by Lynch syndrome (n = 14,700) and hereditary breast and ovarian cancer (n = 8,900). In terms of authorship, 93 (66 %) of all top 140 posts were written by patients, 20 (14.2 %) were written by health care providers and 27 (19.3 %) were written by "other." This study highlights the lack of presence of divisions of gynecologic oncology at NCI-designated Cancer Centers on Instagram but does demonstrate the existence of active discussion on hereditary gynecologic cancers on Instagram by patients.
在过去十年中，社交媒体平台越来越受欢迎，并正在影响患者与医疗保健系统互动的方式。本研究的目的是调查Instagram上妇科肿瘤科室的情况，并分析其帖子的内容。次要目标包括检查和分析Instagram作为对妇科癌症遗传风险增加人群进行患者教育工具的使用情况。在Instagram上搜索了71家美国国立癌症研究所指定的癌症中心、其妇科肿瘤科室以及与遗传性妇科癌症相关的帖子。对内容进行了审查，并分析了作者身份。在71家美国国立癌症研究所指定的癌症中心中，29家（40.8%）有Instagram账户，而四个（6%）妇科肿瘤科室有Instagram账户。对七个最常见的妇科肿瘤遗传学术语的搜索产生了126750条帖子，其中大多数是关于BRCA1（n = 56900）和BRCA2（n = 45000），其次是林奇综合征（n = 14700）和遗传性乳腺癌和卵巢癌（n = 8900）。在作者身份方面，所有前140条帖子中有93条（66%）是患者撰写的，20条（14.2%）是医疗保健提供者撰写的，27条（19.3%）是“其他”撰写的。本研究突出了美国国立癌症研究所指定的癌症中心的妇科肿瘤科室在Instagram上的缺失，但确实表明患者在Instagram上积极讨论遗传性妇科癌症。
