Pase Claudiana, Mathias Andréia Dias, Garcia Clotilde Druck, Garcia Rodrigues Clarissa
Fundação Universitária de Cardiologia, Programa de Pós Graduação, Instituto de Cardiologia, Porto Alegre, Brazil.
Hospital da Criança Santo Antônio, Irmandade Santa Casa de Misericórdia, Porto Alegre, Brazil.
JMIR Res Protoc. 2018 Jan 9;7(1):e3. doi: 10.2196/resprot.8065.
Falling ill represents a traumatic experience especially in adolescence, since in addition to the moments of ambiguity and contradictions that this period brings, there is coping with the disease. Renal transplantation provides a better quality of life but the dependence on dialysis is replaced by the greater responsibility of self-care. With advances in technology, contemporary communication methods are a strategic mechanism for the approximation of the adolescent and the multiprofessional team. In this perspective, our research may provide possible changes and propose alternatives, using social networks for the integration of the multiprofessional team, promoting education within a virtual environment for adolescents who have undergone kidney transplants.
The goal of our research is to compare the knowledge, satisfaction, and self-esteem of adolescent renal transplant patients in 2 groups: patients undergoing conventional treatment versus patients undergoing conventional treatment plus the full-time use of social networks to aid in education and consultation.
Nonblind randomized clinical trial with 128 adolescents (aged 13 to 21 years) divided in 2 groups: the first group will receive conventional care and the second group will be invited to participate in a secret group on the social network Facebook. This group will be used as a new education platform to involve young renal transplant patients to participate in the guidelines provided to them by the multiprofessional team.
An environment for learning and exchanging life experiences will be created by using a well-known technology among adolescents. As a low-cost intervention, it will allow a better interaction between the patient and the transplant team. It is expected that the adolescents will improve their knowledge about the disease also increasing their self-esteem and the treatment adhesion.
Health professionals need to seek alternatives when educating patients, focusing on easily understandable ways for effective guidance. In the adolescent population, it is understood that the use of technology as support in education is a fundamental tool for this age group. The proposed project will directly benefit adolescent renal transplant patients as it uses language aimed directly at the target demographic. It attempts to overcome the traditional model by being more in contact with the current generation. This approach makes the content easier to assimilate and, consequently, increases understanding.
ClinicalTrials.gov: NCT03214965; https://clinicaltrials.gov/ct2/show/NCT02239354 (Archived by Webcite at http://www.webcitation.org/6wKnYrFGx).
患病是一种痛苦的经历，尤其是在青少年时期，因为除了这个阶段所带来的迷茫和矛盾时刻外，还要应对疾病。肾移植能带来更好的生活质量，但对透析的依赖被自我护理的更大责任所取代。随着技术的进步，当代通信方法是拉近青少年与多专业团队距离的一种战略机制。从这个角度来看，我们的研究可能会带来一些变化并提出替代方案，利用社交网络整合多专业团队，为接受肾移植的青少年在虚拟环境中开展教育。
我们研究的目的是比较两组青少年肾移植患者的知识水平、满意度和自尊：接受传统治疗的患者与接受传统治疗并同时充分利用社交网络辅助教育和咨询的患者。
对128名青少年（年龄在13至21岁之间）进行非盲随机临床试验，分为两组：第一组接受传统护理，第二组被邀请加入社交网络Facebook上的一个私密群组。该群组将作为一个新的教育平台，让年轻的肾移植患者参与多专业团队为他们提供的指导。
通过使用青少年熟悉的一项技术，将创建一个学习和交流生活经验的环境。作为一种低成本干预措施，它将使患者与移植团队之间有更好的互动。预计青少年将提高对疾病的认识，同时增强自尊和治疗依从性。
医疗专业人员在对患者进行教育时需要寻求替代方法，注重以易于理解的方式进行有效指导。在青少年群体中，利用技术支持教育是这个年龄组的一项基本工具。拟议的项目将直接惠及青少年肾移植患者，因为它使用的语言直接针对目标人群。它试图通过更多地与当代人接触来克服传统模式。这种方法使内容更容易被吸收，从而增进理解。
ClinicalTrials.gov：NCT03214965；https://clinicaltrials.gov/ct2/show/NCT02239354（由Webcite存档于http://www.webcitation.org/6wKnYrFGx）
