University of Illinois at Chicago, USA.
The University of Texas at Austin, USA.
Autism. 2024 Jan;28(1):149-154. doi: 10.1177/13623613231155773. Epub 2023 Feb 27.
We evaluated the efficacy of the youth version of the program Parents Taking Action in Bogota, Colombia. This program aims to provide information, resources, and strategies about topics of puberty, sexuality, and adolescence for parents of preadolescents with autism spectrum disorder. We examined whether parents in the treatment groups would improve in levels of knowledge, empowerment, self-efficacy, and use of strategies compared to the control group. We recruited two groups of Colombian parents of pre/adolescent with autism spectrum disorder between the ages of 10 and 17 in the city of Bogota, Colombia, through a community-based organization. One of the groups received the intervention and the other served as a control group. Parents in the control group received the intervention after the 4-month follow-up. The intervention included four 3-h weekly sessions in which the curriculum with nine topic areas was delivered providing parents with a space to practice strategies, learn from others, and set goals. Parents in the intervention group reported significantly greater knowledge, self-efficacy, use of strategies, and empowerment compared to the control/waitlist group. Parents were also highly satisfied with the content, materials, and peer connections that the program offered. The program has potential for high impact as information is scarce and parents do not have resources related to the complicated developmental stages of pre/adolescence. The program shows promise as an efficacious tool for community organizations and health providers to provide extra support to families of youth with autism spectrum disorder.
我们评估了哥伦比亚波哥大父母行动青少年版计划的疗效。该计划旨在为患有自闭症谱系障碍的青春期前儿童的父母提供有关青春期、性和青少年主题的信息、资源和策略。我们研究了治疗组的父母在知识、赋权、自我效能和策略使用方面是否会比对照组有所提高。我们通过一个社区组织招募了两组哥伦比亚自闭症谱系障碍青少年(年龄在 10 至 17 岁之间)的父母,一组接受干预,另一组作为对照组。对照组的父母在 4 个月随访后接受了干预。干预措施包括四个每周 3 小时的课程,其中包括九个主题领域的课程,为父母提供了一个练习策略、相互学习和设定目标的空间。与对照组/候补组相比,干预组的父母在知识、自我效能、策略使用和赋权方面的报告显著更高。父母对该计划提供的内容、材料和同伴联系也非常满意。由于信息匮乏,父母也没有与青春期前复杂发育阶段相关的资源,因此该计划具有很高的影响力。该计划有望成为社区组织和卫生提供者为自闭症谱系障碍青少年的家庭提供额外支持的有效工具。