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针对新诊断为自闭症谱系障碍儿童的照料者开展的社区家长教育。

Community-based Parent Education for Caregivers of Children Newly Diagnosed with Autism Spectrum Disorder.

作者信息

Milgramm Anna, Corona Laura L, Janicki-Menzie Cortney, Christodulu Kristin V

机构信息

Center for Autism and Related Disabilities, University at Albany, State University of New York, 1535 Western Avenue, Albany, NY, USA.

Vanderbilt University Medical Center, Nashville, TN, USA.

出版信息

J Autism Dev Disord. 2022 Mar;52(3):1200-1210. doi: 10.1007/s10803-021-05025-5. Epub 2021 Apr 24.

Abstract

Parents of children with autism spectrum disorder (ASD) frequently report high levels of stress related to the process of receiving an ASD diagnosis and navigating the intervention landscape. Parent education programs offer one approach to providing families with support, information, and resources following a child's diagnosis. Given the heterogeneity of such programs, there have been calls within the literature for increased characterization and systematic evaluation of this type of parent-focused intervention. The present study describes the structure and content of a community-based, group-format parent education program for families of children newly diagnosed with ASD. Following program participation, parents reported reductions in parenting stress, increases in knowledge and empowerment, and high levels of satisfaction. Implications and future research directions are discussed.

摘要

患有自闭症谱系障碍(ASD)儿童的家长经常报告称,在接受ASD诊断以及应对干预措施的过程中,他们承受着巨大的压力。家长教育项目为家庭提供了一种途径,以便在孩子被诊断后为其提供支持、信息和资源。鉴于此类项目的多样性,文献中呼吁对这种以家长为中心的干预措施进行更深入的描述和系统评估。本研究描述了一个针对新诊断出患有ASD儿童家庭的社区团体形式家长教育项目的结构和内容。参与该项目后,家长们报告称育儿压力有所减轻,知识和能力有所增强,并且满意度很高。文中还讨论了相关影响及未来的研究方向。

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