Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, SE- 405 30 Gothenburg, Sweden.
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, SE- 405 30 Gothenburg, Sweden; Department of Pediatrics, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
J Pediatr Nurs. 2023 May-Jun;70:79-89. doi: 10.1016/j.pedn.2023.02.005. Epub 2023 Feb 26.
In children with malignant and severe non-malignant disorders undergoing hematopoietic stem cell transplantation (HSCT), treatment related pain and discomfort are common. Food consumption may become troublesome, making the use of a gastrostomy tube (G-tube) necessary and resulting in complications, why the purpose was to explore pain and discomfort during the transplantation and post-transplantation time.
This was a mixed methods study where data were collected along the child's total health-care process between 2018 and 2021. Questions with fixed answer options were used, simultaneously, semi-structured interviews were performed. In total, sixteen families participated. Descriptive statistics and content analysis were used to describe analysed data.
Intense pain was common during the post-surgery phase, especially in conjunction with G-tube care, which is why the children needed support to manage the situation. After the post-surgery phase when the skin has healed, most of the children experienced minor to no pain or bodily discomfort, why the G-tube became a well-functioning and supportive tool in daily life.
This study describes variations in and experiences of pain and bodily discomfort in conjunction with G-tube insertion in a unique sample of children who had undergone HSCT. In conclusion, the children's comfort in daily life after the post-surgery phase seemed to be only marginally affected by G-tube insertion. Children with severe non-malignant disorders seemed to experience a higher frequency and intensity of pain and bodily discomfort due to the G-tube than children with malignant disorders.
The paediatric care team need competence in assessing G-tube related pain and awareness that experiences may differ depending on the child's disorder.
在接受造血干细胞移植（HSCT）的恶性和严重非恶性疾病儿童中，治疗相关的疼痛和不适很常见。食物摄入可能会变得困难，这使得需要使用胃造口管（G-tube），并导致并发症，因此目的是探讨移植期间和移植后的疼痛和不适。
这是一项混合方法研究，在 2018 年至 2021 年间，在儿童整个医疗保健过程中收集数据。使用具有固定答案选项的问题，同时进行半结构化访谈。共有 16 个家庭参与。使用描述性统计和内容分析来描述分析数据。
手术后阶段疼痛剧烈，尤其是在与 G-tube 护理结合时，这就是为什么儿童需要支持来应对这种情况。在手术后阶段皮肤愈合后，大多数儿童经历轻微到无疼痛或身体不适，因此 G-tube 成为日常生活中一个功能良好的支持工具。
本研究描述了在接受 HSCT 的独特儿童样本中，与 G-tube 插入相关的疼痛和身体不适的变化和体验。总之，手术后阶段儿童日常生活的舒适度似乎仅受 G-tube 插入的轻微影响。与恶性疾病儿童相比，患有严重非恶性疾病的儿童似乎因 G-tube 而经历更高频率和强度的疼痛和身体不适。
儿科护理团队需要具备评估 G-tube 相关疼痛的能力，并意识到根据儿童的疾病，体验可能会有所不同。
