Shaw James, Sekalala Sharifah
Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 500 University Avenue, Toronto, ON, M5G 1V7, Canada.
School of Law, University of Warwick, Coventry, CV4 7AL, United Kingdom.
NPJ Digit Med. 2023 Feb 28;6(1):30. doi: 10.1038/s41746-023-00780-4.
The retention and use of health-related data by government, corporate, and health professional actors risk exacerbating the harms of colonial systems of inequality in which health care and public health are situated, regardless of the intentions about how those data are used. In this context, a data justice perspective presents opportunities to develop new norms of health-related data governance that hold health justice as the primary objective. In this perspective, we define the concept of health data justice, outline urgent issues informed by this approach, and propose five calls to action from a health data justice perspective.
政府、企业和医疗专业行为体对健康相关数据的保留和使用，有可能加剧医疗保健和公共卫生所处的殖民不平等体系的危害，无论这些数据的使用意图如何。在这种背景下，数据正义视角为制定以健康正义为首要目标的健康相关数据治理新规范提供了机会。从这个视角出发，我们定义了健康数据正义的概念，概述了基于这种方法产生的紧迫问题，并从健康数据正义视角提出了五项行动呼吁。
