Munung Nchangwi Syntia, Ewuoso Cornelius, Chimusa Emile R, Ogundiran Temidayo
Division of Human Genetics, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.
Steve Biko Centre for Bioethics, School of Clinical Medicine, University of the Witwatersrand, Johannesburg, South Africa.
Nat Commun. 2025 Aug 30;16(1):8122. doi: 10.1038/s41467-025-63289-2.
We propose a roadmap for promoting a data-sharing culture in African health research governed by data justice and solidarity. This framework integrates dynamic consent, equitable benefit-sharing, reciprocity, data custodianship, controlled access infrastructures, and data sovereignty
我们提出了一个路线图,以促进受数据公正和团结原则指导的非洲健康研究中的数据共享文化。该框架整合了动态同意、公平利益分享、互惠、数据托管、受控访问基础设施和数据主权。