Setiawan Henri, Firmansyah Andan, Richard Selvia D
Department of Nursing, STIKes Muhammadiyah Ciamis, Indonesia.
Department of Nursing, STIKes RS Baptis Kediri, Indonesia.
J Taibah Univ Med Sci. 2023 Feb 20;18(5):964-966. doi: 10.1016/j.jtumed.2023.02.007. eCollection 2023 Oct.
Thalassemia is the most common genetic disease in Indonesia and is passed on to the next generation following an autosomal recessive Mendelian inheritance pattern. The number of thalassemia sufferers in Indonesia increased from 4896 in 2012 to 8761 in 2018. The latest data in 2019 shows a significant increase to 10,500 patients. Community nurses who work at the Public Health Center, have full roles and responsibilities in carrying out promotive and preventive efforts against thalassemia cases. Promotive efforts that can be carried out are guided by government policies (Ministry of Health, Republic of Indonesia) which stipulate primary efforts in the form of education about thalassemia disease, prevention efforts, and diagnostic tests that can be taken. To optimize the promotive and preventive efforts, community nurses need to collaborate with midwives and cadres at integrated service posts. Interprofessional collaboration between stakeholders can strengthen the government's consideration in making policies for dealing with thalassemia cases in Indonesia.
地中海贫血是印度尼西亚最常见的遗传疾病，遵循常染色体隐性孟德尔遗传模式遗传给下一代。印度尼西亚地中海贫血患者的数量从2012年的4896例增加到2018年的8761例。2019年的最新数据显示大幅增加至10500名患者。在公共卫生中心工作的社区护士在开展针对地中海贫血病例的促进和预防工作中承担着全部的角色和责任。可以开展的促进工作以政府政策（印度尼西亚共和国卫生部）为指导，这些政策规定了以地中海贫血疾病教育、预防工作和可进行的诊断测试等形式的主要工作。为了优化促进和预防工作，社区护士需要与综合服务点的助产士和干部合作。利益相关者之间的跨专业合作可以加强政府在制定应对印度尼西亚地中海贫血病例政策方面的考虑。
