Mac Donald Benjamin, Gustafsson Sanna A, Bulik Cynthia M, Clausen Loa
Department of Clinical Medicine, Aarhus University, Palle Juul Jensens-Boulevard 99, 8200, Aarhus, Denmark.
Department of Child and Adolescent Psychiatry, Aarhus University Hospital, Palle Juul-Jensens Boulevard 175, Entrance K, 8200, Aarhus, Denmark.
J Eat Disord. 2023 Mar 13;11(1):40. doi: 10.1186/s40337-023-00765-4.
A small but significant group of patients with anorexia nervosa (AN) undergo multiple involuntary treatment (IT) events. To enhance our understanding of IT and potentially inform treatment, we explored experiences and perspectives on IT of these patients.
We designed a qualitative semi-structured interview study and used reflexive thematic analysis. Participants were at least 18 years of age, had multiple past IT events (≥ 5) related to AN over a period of at least one month of which the last IT event happened within the preceding five years. Participants had no current IT, intellectual disability, acute psychosis, or severe developmental disorder. We adopted an inductive approach and constructed meaning-based themes.
We interviewed seven participants. The data portrayed a process of living and leaving a life of coercion with a timeline covering three broad themes: living with internal coercion, coercive treatment, and leaving coercion; and five subthemes: helping an internal battle, augmenting suffering, feeling trapped, a lasting imprint, and changing perspectives. We highlighted that patients with AN and multiple IT events usually experienced internal coercion from the AN prior to external coercion from the health care system. IT evoked significant negative affect when experienced, and often left an adverse imprint. Moreover, IT could help an internal battle against AN and perspectives on IT could change over time.
Our study suggests that feeling internally coerced by AN itself sets the stage for IT. Clinicians should be conscious of the potential iatrogenic effects of IT, and reserve IT for potentially life-threatening situations.
一小部分但数量可观的神经性厌食症(AN)患者经历了多次非自愿治疗(IT)事件。为了加深我们对非自愿治疗的理解并可能为治疗提供参考,我们探讨了这些患者对非自愿治疗的经历和看法。
我们设计了一项定性的半结构化访谈研究,并采用了反思性主题分析。参与者年龄至少为18岁,在至少一个月的时间内有多次与神经性厌食症相关的非自愿治疗事件(≥5次),且最后一次非自愿治疗事件发生在前五年内。参与者目前没有接受非自愿治疗,没有智力残疾、急性精神病或严重发育障碍。我们采用归纳法构建基于意义的主题。
我们采访了7名参与者。数据描绘了一个生活在强制状态并摆脱这种状态的过程,时间线涵盖三个广泛主题:生活在内在强制中、强制治疗和摆脱强制;以及五个子主题:助力内心斗争、加剧痛苦、感到被困、持久印记和改变观念。我们强调,患有神经性厌食症且经历多次非自愿治疗事件的患者通常在受到医疗系统的外部强制之前,就已经经历了来自神经性厌食症的内在强制。非自愿治疗在经历时会引发显著的负面影响,并且常常留下不良印记。此外,非自愿治疗可以帮助对抗神经性厌食症的内心斗争,而且对非自愿治疗的看法可能会随着时间而改变。
我们的研究表明,被神经性厌食症本身内在强制的感觉为非自愿治疗奠定了基础。临床医生应意识到非自愿治疗潜在的医源性影响,并仅在可能危及生命的情况下使用非自愿治疗。