Norwich Medical School, University of East Anglia, Norwich, UK.
School of Health Sciences, University of East Anglia, Norwich, UK.
Sociol Health Illn. 2023 Jul;45(6):1300-1316. doi: 10.1111/1467-9566.13627. Epub 2023 Mar 14.
This paper draws attention to the health-related work that disabled people do when engaging with rehabilitation services. Medical sociology has a rich history of looking at the 'illness work' that patients do, while disability studies scholars have explored the cultural value placed upon paid work and the effects on social status of being unable to work. Yet, a longstanding froideur between these two disciplines, which have fundamentally opposed ontologies of illness and disability, means that neither discipline has attended closely to the rehabilitation-related work that disabled people do. The concept of 'adjusting' to illness highlights seemingly irreconcilable disciplinary differences. Yet this article argues that the notion of 'adjustment work' can elucidate the socio-political character of the work disabled people do in their rehabilitation, which could create a more substantial and sustainable dialogue on this subject between disability studies and medical sociology. To make this case, we discuss interview data from the Rights-based Rehabilitation project, which sought to explore disabled people's lived experiences of rehabilitation.
本文提请关注残疾人在接受康复服务时所做的与健康相关的工作。医学社会学有着丰富的研究患者“疾病工作”的历史，而残疾研究学者则探讨了对有偿工作的文化价值以及无法工作对社会地位的影响。然而，这两个学科之间长期存在着冷漠关系，它们从根本上反对疾病和残疾的本体论，这意味着这两个学科都没有密切关注残疾人在康复方面所做的工作。“适应”疾病的概念突出了看似不可调和的学科差异。然而，本文认为，“调整工作”的概念可以阐明残疾人在康复过程中所做工作的社会政治性质，这可以在残疾研究和医学社会学之间就这一主题展开更实质性和可持续的对话。为了说明这一点，我们讨论了基于权利的康复项目的访谈数据，该项目旨在探讨残疾人对康复的生活体验。
