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希望与梦想:一种双诊所 NICU 随访模式。

HOPE and DREAM: A Two-Clinic NICU Follow-up Model.

机构信息

Division of Neonatology, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, Wisconsin.

Department of Neurology, Medical College of Wisconsin, Milwaukee, Wisconsin.

出版信息

Am J Perinatol. 2024 May;41(S 01):e1570-e1574. doi: 10.1055/a-2053-7513. Epub 2023 Mar 14.

Abstract

OBJECTIVE

The natural extension of inpatient-focused neonatal neurocritical care (NNCC) programs is the evaluation of long-term neurodevelopmental outcomes in the same patient population.

CLINICAL DESIGN

A dedicated and collaborative team of neonatologists, neonatal neurologists, neuropsychologists, neurosurgeons, physical medicine and rehabilitation physicians, and psychologists are necessary to provide personalized medicine, developmental assessments, and parental education for NNCC graduates. To achieve this goal, we devised a two-clinic follow-up model at Children's Wisconsin: HOPE (Healthy Outcomes Post-ICU Engagement) and DREAM: Developmentally Ready: Engagement for Achievement of Milestones) clinics. Those infants with significant neurologic diagnoses attend DREAM clinic, while all other high-risk neonatal intensive care unit (NICU) infants are seen in the HOPE clinic.

CONCLUSION

These clinic models allow for a targeted approach to post-NICU care, which has improved family engagement and perceptions of value.

KEY POINTS

· Infants with neurologic compromise are a specialized population with increasing survival.. · Interdisciplinary NICU follow-up brings together previously separated outpatient service lines.. · Our novel clinic model allows for specialized developmental assessments..

摘要

目的

住院为主的新生儿神经重症监护(NNCC)计划的自然延伸是评估同一患者群体的长期神经发育结局。

临床设计

需要由新生儿科医生、新生儿神经科医生、神经心理学家、神经外科医生、物理医学和康复医师以及心理学家组成专门的协作团队,为 NNCC 毕业生提供个性化医疗、发育评估和家长教育。为了实现这一目标,我们在威斯康星州儿童医院设计了一种两诊所随访模式:HOPE(重症监护后健康结果参与)和 DREAM:发展准备:实现里程碑的参与)诊所。那些有明显神经系统诊断的婴儿在 DREAM 诊所就诊,而所有其他高危新生儿重症监护病房(NICU)婴儿都在 HOPE 诊所就诊。

结论

这些诊所模式为 NICU 后护理提供了一种针对性的方法,提高了家庭参与度和对价值的认知。

要点

·有神经功能障碍的婴儿是一个具有较高生存率的特殊群体。·新生儿重症监护病房的多学科随访将以前分离的门诊服务线结合在一起。·我们新颖的诊所模式允许进行专门的发育评估。

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