Department of Health Science, Kitasato University School of Allied Health Sciences, Kanagawa, Japan.
Department of Clinical Neuropsychology, Kitasato University Graduate School of Medical Sciences, Kanagawa, Japan.
BMC Palliat Care. 2023 Mar 15;22(1):23. doi: 10.1186/s12904-023-01138-z.
Psychological distress is a major concern for patients with end-stage heart failure (HF). However, psychiatric care for patients with HF is not as organized as that for patients with cancer. Therefore, the aim of this study was to elucidate and compare the barriers faced by health care providers of cardiology and oncology hospitals in providing end-of-life psychiatric care to patients with HF and cancer, respectively.
We conducted a cross-sectional questionnaire survey among the health care providers of Japan. Questionnaires were mailed to physicians and nurses of 427 cardiology and 347 oncology hospitals in March 2018 to assess health care providers' perspectives. First, we compared the scores of the Palliative Care Difficulties Scale and the original scale of end-of-life psychiatric care difficulties between health care providers of cardiology and oncology hospitals. Second, we asked the health care providers to describe the barriers to providing end-of-life psychiatric care with an open-ended question and then compared the freely-provided descriptions using content analysis.
A total of 213 cardiology and 224 oncology health care providers responded to the questionnaire. No significant differences were found between health care providers of cardiology and oncology hospitals in the frequency of experiencing barriers to providing end-of-life psychiatric care (59.8% and 62.2%, respectively). A content analysis identified the following eight barriers: "patients' personal problems," "family members' problems," "professionals' personal problems," "communication problems between professionals and patients," "problems specific to end-of-life care," "problems specific to psychiatric care," "problems of institution or system," and "problems specific to non-cancer patients." The "problems specific to noncancer patients" was described more frequently by health care providers in cardiology hospitals than that in oncology hospitals. However, there were no significant differences in other items between the two.
Although health care providers of both cardiology and oncology hospitals faced barriers to providing end-of-life psychiatric care, those of cardiology hospitals particularly faced challenges pertaining to non-cancer patients, such as unpredictability of prognosis or insufficiency of guideline development. A system of psychiatric care, specifically for patients with HF, should be established.
心理困扰是终末期心力衰竭(HF)患者的主要关注点。然而,HF 患者的精神保健不如癌症患者那样有组织。因此,本研究旨在阐明并比较心脏病学和肿瘤医院的医疗保健提供者在分别为 HF 和癌症患者提供临终期精神保健方面所面临的障碍。
我们对日本的医疗保健提供者进行了横断面问卷调查。2018 年 3 月,向 427 家心脏病学医院和 347 家肿瘤医院的医生和护士邮寄了问卷,以评估医疗保健提供者的观点。首先,我们比较了心脏病学和肿瘤医院医疗保健提供者的姑息治疗困难量表和临终期精神保健困难原始量表的评分。其次,我们要求医疗保健提供者使用开放式问题描述提供临终期精神保健的障碍,然后使用内容分析法比较自由提供的描述。
共有 213 名心脏病学和 224 名肿瘤学医疗保健提供者对问卷做出了回应。心脏病学和肿瘤医院的医疗保健提供者在提供临终期精神保健障碍的频率方面没有差异(分别为 59.8%和 62.2%)。内容分析确定了以下 8 个障碍:“患者的个人问题”、“家庭成员的问题”、“专业人员的个人问题”、“专业人员与患者之间的沟通问题”、“临终关怀的具体问题”、“精神保健的具体问题”、“机构或系统的问题”和“非癌症患者的具体问题”。心脏病学医院的医疗保健提供者比肿瘤医院的医疗保健提供者更频繁地描述“非癌症患者的具体问题”。但是,在其他项目上两者没有差异。
尽管心脏病学和肿瘤医院的医疗保健提供者都面临提供临终期精神保健的障碍,但心脏病学医院的医疗保健提供者特别面临与非癌症患者相关的挑战,例如预后的不可预测性或指南制定的不足。应该为 HF 患者建立专门的精神保健系统。