Ohara Chisato, Nishizono-Maher Aya, Sekiguchi Atsushi, Sugawara Ayako, Morino Yuriko, Kawakami Junko, Hotta Mari
Department of Clinical Psychology, Faculty of Human Sciences, Bunkyo University, 3337 Minami-Ogishima, Koshigaya-Shi, Saitama, 343-8511, Japan.
Department of Behavioral Medicine, National Center of Neurology and Psychiatry, National Institute of Mental Health, Tokyo, Japan.
Biopsychosoc Med. 2023 Mar 14;17(1):11. doi: 10.1186/s13030-023-00267-4.
Peer support among family members is important in cases of mental illness, but there has been limited practice or research on individual peer support specific to families taking care of patients with eating disorders (EDs). To conduct peer support activities, it is necessary to clarify the needs of families.
The objective of this study are to identify the needs for group and individual peer support and the characteristics of family members with EDs who are willing to receive and provide individual peer support.
A cross-sectional questionnaire survey was conducted for family members with EDs recruited via the Internet. The questionnaires included demographic information on respondents and their patients, questions about the need for family peer support, interest in offering peer support, and social resources. All participants were given the General Health Questionnaire (GHQ-12), the Zarit Caregiver Burden Interview (J-ZBI_8), and the Anorectic Behavior Observation Scale (ABOS).
Out of 314 respondents, 87.3% believed that a group peer support system was necessary, whereas 56.7% believed that an individual peer support system was necessary. As to whether they want to use individual peer support, 70 (22.4%) stated "Extremely YES" and 99 (31.7%) stated "Moderately YES." Family members who were willing to receive individual peer support used more social resources and had higher scores on the GHQ and J-ZBI_8. Regarding the provision of peer support, 38 (12.2%) responded "very interested and willing to provide it if possible" and 87 (27.9%) responded "interested and willing to study." Those with a high willingness to provide peer support used more social resources and had lower ABOS scores; however, 38 respondents (45.7%) exceeded the GHQ mental health screening cutoff (3/4).
Family members with ED had a strong need for family peer support Those willing to receive individual peer support suffered from poor mental health and high burden of care. Family members willing to provide peer support tended to have patients whose EDs symptoms had already improved, but their own mental health was not necessarily good. Training for potential peer supporters is needed to implement peer support.
在精神疾病案例中，家庭成员间的同伴支持很重要，但针对照顾饮食失调（ED）患者的家庭开展的个体同伴支持方面的实践或研究有限。为开展同伴支持活动，有必要明确家庭的需求。
本研究的目的是确定团体和个体同伴支持的需求，以及愿意接受和提供个体同伴支持的患有饮食失调症家庭成员的特征。
通过互联网招募了患有饮食失调症患者的家庭成员进行横断面问卷调查。问卷包括受访者及其患者的人口统计学信息、关于家庭同伴支持需求的问题、提供同伴支持的兴趣以及社会资源。所有参与者都接受了一般健康问卷（GHQ - 12）、扎里特照顾者负担访谈（J - ZBI_8）和厌食行为观察量表（ABOS）。
在314名受访者中，87.3%的人认为团体同伴支持系统是必要的，而56.7%的人认为个体同伴支持系统是必要的。关于是否希望使用个体同伴支持，70人（22.4%）表示“非常愿意”，99人（31.7%）表示“比较愿意”。愿意接受个体同伴支持的家庭成员使用了更多的社会资源，并且在GHQ和J - ZBI_8上得分更高。关于提供同伴支持，38人（12.2%）回答“非常感兴趣并愿意尽可能提供”，87人（27.9%）回答“感兴趣并愿意学习”。提供同伴支持意愿较高的人使用了更多的社会资源，并且ABOS得分较低；然而，38名受访者（45.7%）超过了GHQ心理健康筛查临界值（3/4）。
患有饮食失调症患者的家庭成员对家庭同伴支持有强烈需求。愿意接受个体同伴支持的人心理健康状况不佳且照顾负担较重。愿意提供同伴支持的家庭成员的患者饮食失调症状往往已经有所改善，但他们自己的心理健康状况不一定良好。需要对潜在的同伴支持者进行培训以实施同伴支持。
