“我做不到”：大流行期间丧亲家庭成员经历的伦理困境的现象学探索。
"I couldn't": A phenomenological exploration of ethical tensions experienced by bereaved family members during the pandemic.
机构信息
Psychology Department, Université du Québec à Montréal, Montréal, Canada.
Center for Research and Intervention on Suicide, Ethical Issues and End-of-Life Practices (CRISE), Montreal, Canada.
出版信息
Int J Qual Stud Health Well-being. 2023 Dec;18(1):2186337. doi: 10.1080/17482631.2023.2186337.
INTRODUCTION
The COVID-19 pandemic entailed significant changes in accompaniment, end-of-life, and bereavement experiences. In some countries, public health measures prevented or restricted family caregivers from visiting their dying loved ones in residences, long-term care institutions, and hospitals. As a result, family members were faced with critical decisions that could easily lead to ethical dilemmas and moral distress.
AIM
This study aimed to understand better the experience of ethical dilemmas among family caregivers who lost a loved one.
METHDS
We interviewed twenty bereaved family caregivers and analysed their narratives using Interpretative phenomenological analysis.
RESULTS
Our analysis suggests that family caregivers struggled with their multiple responsibilities (collective, relational, and personal) and had to deal with the emotional cost of their choices. Results display three emerging themes describing the experience of ethical struggles: (1) Flight or fight: Struggling with collective responsibility; (2) Being torn apart: Assuming relational responsibility and (3) "Choosing" oneself: The cost of personal responsibility.
DISCUSSION/CONCLUSION: Results are discussed and interpreted using an ethical, humanistic, and existential conceptual framework.
简介
COVID-19 大流行带来了陪伴、临终和丧亲体验的重大变化。在一些国家，公共卫生措施阻止或限制了家庭护理人员前往住所、长期护理机构和医院探望临终的亲人。因此，家庭成员面临着可能轻易导致伦理困境和道德困境的关键决策。
目的
本研究旨在更好地了解失去亲人的家庭护理人员所经历的伦理困境。
方法
我们采访了二十名失去亲人的家庭护理人员，并使用解释现象学分析对他们的叙述进行了分析。
结果
我们的分析表明，家庭护理人员在其多重责任（集体责任、关系责任和个人责任）上挣扎，并且不得不应对其选择的情感代价。结果显示了描述伦理斗争体验的三个新出现的主题：（1）逃避或战斗：与集体责任作斗争；（2）被撕裂：承担关系责任和（3）“选择”自己：个人责任的代价。
讨论/结论：使用伦理、人本主义和存在主义概念框架对结果进行了讨论和解释。
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