Le PhuongThao D, Choe Karen, Burrone María Soledad, Bello Iruma, Velasco Paola, Arratia Tamara, Tal Danielle, Mascayano Franco, Jorquera María José, Schilling Sara, Ramírez Jorge, Arancibia Diego, Fader Kim, Conover Sarah, Susser Ezra, Dixon Lisa, Alvarado Rubén, Yang Lawrence H, Cabassa Leopoldo J
School of Global Public Health, New York University, New York, NY, United States.
Instituto de Ciencias de la Salud, Universidad de O'Higgins, Rancagua, Chile.
Front Health Serv. 2022 Nov 4;2:958743. doi: 10.3389/frhs.2022.958743. eCollection 2022.
In 2005, Chile became the first country in Latin America to guarantee universal free access for the diagnosis and treatment of schizophrenia. A cluster randomized control trial utilizing the Dynamic Adaptation Process framework is underway to adapt and test the OnTrack coordinated specialty care model to provide recovery-oriented, person-centered care by a multidisciplinary team for individuals with first episode psychosis (FEP) in Chile.
A qualitative formative research study was conducted to inform the initial adaptation of the OnTrack Chile (OTCH) program. We conducted key informant interviews ( = 17) with various stakeholders (policymakers; directors/managers of community mental health centers; mental health professionals) and focus group discussions ( = 6) with individuals with FEP and caregivers ( = 35 focus group participants total). Data was analyzed using thematic analysis, organized by participants' perspectives on the benefits, barriers, and recommendations for the key principles, multidisciplinary team, psychosocial components, and the training and supervision model of OnTrack.
Participants expressed enthusiasm and support for OnTrack's recovery-oriented and person-centered principles of care. While many participants lauded the emphasis on shared decision-making and family involvement, some reported reticence, citing that it is culturally normative for patients and families to adopt a passive role in treatment. Peer specialists, and the family psychoeducation and support and supported education and employment components were perceived as aspects that could encourage the promotion of personhood and autonomy development. However, implementation challenges, including the prevailing biomedical approach, professional hierarchy, and the lack of infrastructure, human, and financial resources necessitate some modifications to these aspects. Some mental health professionals further conveyed reservations regarding the perceived hierarchical structure of the supervision model.
OnTrack represents a shift from a biomedical model to a valued, aspirational, person-centered and culturally responsive model that focuses on recovery, shared decision-making and psychosocial care. With the appropriate governmental and agency-level provision of resources and modifications to some of the program components, particularly regarding the shared decision-making framework, peer specialist, family engagement, and the training supervision model, OTCH could be a transformative program for a more comprehensive, evidence-based care for individuals with FEP in Chile.
2005年,智利成为拉丁美洲首个保障精神分裂症诊断和治疗普遍免费获取的国家。一项利用动态适应过程框架的整群随机对照试验正在进行,以调整和测试OnTrack协调专科护理模式,由多学科团队为智利的首发精神病(FEP)患者提供以康复为导向、以人为本的护理。
开展了一项定性的形成性研究,为智利OnTrack(OTCH)项目的初步调整提供信息。我们对不同利益相关者(政策制定者;社区心理健康中心主任/经理;心理健康专业人员)进行了关键 informant访谈(n = 17),并与FEP患者及其照顾者进行了焦点小组讨论(n = 6,焦点小组参与者共35人)。使用主题分析对数据进行分析,根据参与者对OTCH关键原则、多学科团队、心理社会组成部分以及培训和监督模式的益处、障碍和建议的观点进行组织。
参与者对OnTrack以康复为导向和以人为本的护理原则表示热情和支持。虽然许多参与者赞扬了对共同决策和家庭参与的强调,但一些人表示有所保留,称患者和家庭在治疗中采取被动角色在文化上是规范的。同伴专家、家庭心理教育与支持以及支持性教育与就业组成部分被视为可以鼓励促进人格和自主性发展的方面。然而,实施挑战,包括普遍存在的生物医学方法、专业等级制度以及缺乏基础设施、人力和财力资源,需要对这些方面进行一些修改。一些心理健康专业人员进一步表达了对监督模式中感知到的等级结构的保留意见。
OnTrack代表了从生物医学模式向一种有价值、有抱负、以人为本且具有文化响应性的模式的转变,该模式侧重于康复、共同决策和心理社会护理。通过政府和机构层面适当提供资源并对一些项目组成部分进行修改,特别是关于共同决策框架、同伴专家、家庭参与和培训监督模式,OTCH可能成为一个变革性项目,为智利的FEP患者提供更全面、基于证据的护理。