Department of Surgery, University of Toronto, Toronto, Ontario, Canada.
Institute of Health Policy Management and Evaluation, University of Toronto Dalla Lana School of Public Health, Toronto, Ontario, Canada.
BMJ Open. 2023 Mar 17;13(3):e071201. doi: 10.1136/bmjopen-2022-071201.
Patient-centred care is valued by patients and providers. As management of cancer becomes increasingly complex, the value of providing care that incorporates an individual's values and preferences along with demographic and tumour factors is increasingly important. To improve care, patients with cancer need easily accessible information on the outcomes important to them. The patient-centred outcome, days at home (DAH), is based on a construct that measures the time a patient spends alive and out of hospitals and healthcare institutions. DAH is accurately measured from various data sources and has shown construct validity with many patient-centred outcomes. There is significant heterogeneity in terms used and definitions for DAH in cancer care. This scoping review aims to consolidate information on the outcome DAH in cancer care and to review definitions and terms used to date to guide future use of DAH as a patient-centred care, research and policy tool.
This scoping review protocol has been designed with joint guidance from the and the expanded framework from Arksey and O'Malley. We will systematically search MEDLINE, Embase and Scopus for studies measuring DAH, or equivalent, in the context of active adult cancer care. Broad inclusion criteria have been developed, given the recent introduction of DAH into cancer literature. Editorials, opinion pieces, case reports, abstracts, dissertations, protocols, reviews, narrative studies and grey literature will be excluded. Two authors will independently perform full-text selection. Data will be extracted, charted and summarised both qualitatively and quantitively.
No ethics approval is required for this scoping review. Results will be disseminated through scientific publication and presentation at relevant conferences.
以患者为中心的护理受到患者和医护人员的重视。随着癌症管理变得越来越复杂，提供既包含个人价值观和偏好，又包含人口统计学和肿瘤因素的护理的重要性日益增加。为了改善护理，癌症患者需要能够轻松获取对他们重要的结果相关信息。以患者为中心的结果，即在家天数（DAH），是基于一个衡量患者在医院和医疗机构外生存和康复时间的指标。DAH 可以通过多种数据源准确测量，并已通过多项以患者为中心的结果证明了其构建效度。在癌症护理中，DAH 的使用术语和定义存在显著的异质性。本范围综述旨在整合癌症护理中 DAH 结果的信息，并回顾迄今为止用于指导 DAH 作为以患者为中心的护理、研究和政策工具的定义和术语。
本范围综述方案是在与 以及 Arksey 和 O'Malley 扩展框架的联合指导下设计的。我们将系统地在 MEDLINE、Embase 和 Scopus 中搜索测量 DAH 或与之等效的研究，这些研究是在成人癌症护理的背景下进行的。鉴于 DAH 最近被引入癌症文献，我们制定了广泛的纳入标准。社论、观点文章、病例报告、摘要、论文、方案、综述、叙事研究和灰色文献将被排除在外。两名作者将独立进行全文筛选。将定性和定量地提取、图表和总结数据。
本范围综述不需要伦理批准。结果将通过科学出版物和相关会议的演讲进行传播。
