土耳其罕见病患者家庭的自付医疗支出。
Out-of-pocket healthcare expenditures of Turkish households living with rare diseases.
机构信息
ECONiX Research, Analysis and Consultancy Inc., Samsun, Türkiye.
Department of Healthcare Management, Tarsus University, Mersin, Türkiye.
出版信息
Front Public Health. 2023 Mar 3;11:1051851. doi: 10.3389/fpubh.2023.1051851. eCollection 2023.
INTRODUCTION
This study aims to determine the out-of-pocket health expenditures of households in Turkey where individuals with rare diseases are residing.
METHODS
The research population consisted registered members of associations who are members of the Rare Diseases Network. In addition to the general analysis including all participants, expenditures based on characteristics of disease holders were also calculated.
RESULTS
A total of 439 participants were included in the analysis. We determined that special nutrition was the highest expenditure group and emergency departments were the lowest expenditure group. When all the participants were evaluated, the average cost of rare diseases was found to be Ł22,743 (€2,877). A significant relationship was found between income status and out-of-pocket health expenditures ( = 0.012).
DISCUSSION
Policy makers should consider inclusion of special nutritional products and medical/non-medical devices used in treatment of rare diseases within the scope of reimbursement and the development of orphan drug legislation as the first actions to be taken.
简介
本研究旨在确定土耳其居住有罕见病患者的家庭的自付医疗支出。
方法
研究人群包括罕见病网络协会的注册会员。除了包括所有参与者的一般分析外，还根据疾病持有者的特征计算了支出。
结果
共有 439 名参与者纳入分析。我们发现特殊营养是支出最高的群体，而急诊部门是支出最低的群体。当评估所有参与者时，罕见病的平均费用为 22743 里拉（2877 欧元）。收入状况与自付医疗支出之间存在显著关系（=0.012）。
讨论
决策者应考虑将特殊营养产品和治疗罕见病中使用的医疗/非医疗设备纳入报销范围，并制定孤儿药立法，作为首先要采取的行动。
Zotero 插件