Miller John, Ioffreda Patrick, Nugent Shannon, Jones Elizabeth
Sidney Kimmel Medical College, Thomas Jefferson University Philadelphia, PA United States.
Department of Dermatology and Cutaneous Biology Sidney Kimmel Medical College Thomas Jefferson University Philadelphia, PA United States.
JMIR Dermatol. 2023 Feb 28;6:e43983. doi: 10.2196/43983. eCollection 2023.
Patient-to-provider teledermatology relies on a patient's access to technology to ensure a successful visit. However, access to broadband internet and technology varies across populations in the United States-leading to the digital divide. While teledermatology has been recognized as a model to improve access, little is known about how often demographic data associated with digital inequity are captured in studies.
Given the expansion of teledermatology over the past decade, we sought to determine how often demographic data associated with digital inequity are reported in patient-to-provider teledermatology studies.
A scoping literature review search was conducted using the search term in the following databases: PubMed, Embase, and the Cochrane Database of Systematic Reviews. All studies published between December 31, 2011, and December 31, 2021, that evaluated patient-to-provider teledermatology were eligible.
In total, 1412 publications describing teledermatology were identified, of which 46 met the inclusion criteria. Race or ethnicity was the most frequently reported demographic characteristic (28/46, 61%). However, only 41% (19/46) of studies were representative of race or ethnicity, defined as including >20% nonwhite participants. Studies rarely reported the number of participants greater than 65 years of age (14/46, 30%), preferred language (9/46, 20%), income (6/46, 13%), highest level of education (5/46, 11%), or access to a device (4/46, 9%). Studies conducted after the onset of the COVID-19 pandemic were significantly more likely to report preferred language (9/25, 36% vs 0%; =.002) and appeared more likely to report other demographic data associated with digital inequity, without reaching statistical significance (>.05).
Demographic data associated with digital inequity are rarely reported in patient-to-provider teledermatology studies to date. These studies frequently lack adequate representation of racial and ethnic minorities. With increased calls for equitable representation in dermatology studies, future teledermatology studies can improve the reporting of race and ethnicity and consider demographic data associated with digital inequity as an important criterion in research design.
患者与医疗服务提供者之间的远程皮肤病学依赖于患者获取技术以确保就诊成功。然而,美国不同人群使用宽带互联网和技术的情况各不相同,这导致了数字鸿沟。虽然远程皮肤病学已被视为改善医疗服务可及性的一种模式,但对于研究中与数字不平等相关的人口统计数据的获取频率知之甚少。
鉴于过去十年远程皮肤病学的发展,我们试图确定在患者与医疗服务提供者之间的远程皮肤病学研究中,与数字不平等相关的人口统计数据的报告频率。
在以下数据库中使用检索词进行范围界定文献综述检索:PubMed、Embase和Cochrane系统评价数据库。所有在2011年12月31日至2021年12月31日期间发表的评估患者与医疗服务提供者之间远程皮肤病学的研究均符合纳入标准。
总共识别出1412篇描述远程皮肤病学的出版物,其中46篇符合纳入标准。种族或族裔是最常报告的人口统计学特征(28/46,61%)。然而,只有41%(19/46)的研究具有种族或族裔代表性,即非白人参与者比例超过20%。研究很少报告65岁以上参与者的数量(14/46,30%)、首选语言(9/46,20%)、收入(6/46,13%)、最高教育水平(5/46,11%)或设备使用情况(4/46,9%)。在新冠疫情爆发后进行的研究更有可能报告首选语言(9/25,36%对0%;P =.002),并且似乎更有可能报告与数字不平等相关的其他人口统计数据,但未达到统计学意义(P>.05)。
迄今为止,在患者与医疗服务提供者之间的远程皮肤病学研究中,很少报告与数字不平等相关的人口统计数据。这些研究往往缺乏对少数族裔的充分代表性。随着皮肤科研究中对公平代表性的呼声日益增高,未来的远程皮肤病学研究可以改进种族和族裔的报告,并将与数字不平等相关的人口统计数据视为研究设计中的重要标准。