School of Healthcare Sciences, Cardiff University, Cardiff, UK.
Department of Nursing, Midwifery and Health, Northumbria University, Newcastle upon Tyne, UK.
J Ren Care. 2024 Jun;50(2):138-150. doi: 10.1111/jorc.12464. Epub 2023 Mar 22.
Peritonitis is the main treatment-related complication of peritoneal dialysis and a primary concern for patients and their relatives. Therefore, understanding their perceptions of peritonitis is important.
To explore patients' and relatives' perceptions of peritoneal dialysis-associated peritonitis risk, prevention measures and experiences of diagnosis, and experience of perceived stigma.
A sequential mixed methods study design was used, including a questionnaire and semi-structured interviews.
Patients using peritoneal dialysis and relatives (n = 75) from six National Health Service organisations from the United Kingdom.
A structured questionnaire was administered with patients and relatives (n = 75) using peritoneal dialysis; data were analysed using descriptive statistics. Thirty questionnaire respondents were then purposively sampled and interviewed in-depth; data were analysed thematically. Data were collected 2017-2018. Ethical and governance approvals were gained.
Qualitative and quantitative analyses were integrated and three themes presented: • Perceptions of risk: participants assessed their risk of developing peritonitis and possible implications on their health and relatives. Participants felt greatly responsible for preventing infection. • Preventing peritonitis: participants reported similar and some differing measures to minimise their risk of developing peritonitis. Participants wanted to be seen as "clean". • Diagnosis of peritonitis: peritonitis diagnosis was embarrassing and stigmatising for many individuals. This was influenced by the response of healthcare professionals and the cause of peritonitis.
It is important that healthcare professionals are aware of how responsible patients and relatives feel about preventing peritonitis, the emotional effect of this responsibility and crucially the impact this may have on seeking help.
腹膜炎是腹膜透析患者最常见的治疗相关并发症，也是患者及其家属最关心的问题。因此，了解他们对腹膜炎的看法非常重要。
探讨患者及其家属对腹膜透析相关性腹膜炎风险、预防措施、诊断体验以及感知耻辱感的看法。
采用序贯混合方法设计，包括问卷调查和半结构式访谈。
来自英国 6 个国民保健署的 75 名腹膜透析患者及其家属。
对 75 名腹膜透析患者及其家属进行了结构化问卷调查；使用描述性统计方法对数据进行分析。然后，从 30 名问卷调查参与者中采用目的性抽样方法进行深入访谈；使用主题分析法对数据进行分析。数据收集于 2017-2018 年。已获得伦理和治理批准。
整合了定性和定量分析结果，提出了 3 个主题：①对风险的看法：参与者评估了自己发生腹膜炎的风险及其对健康和亲属的可能影响。参与者对预防感染有强烈的责任感。②预防腹膜炎：参与者报告了类似的和一些不同的措施来尽量降低发生腹膜炎的风险。参与者希望被视为“干净”的。③腹膜炎的诊断：腹膜炎的诊断对许多人来说是尴尬和耻辱的。这受到医护人员反应和腹膜炎病因的影响。
医护人员应意识到患者及其家属对预防腹膜炎的责任感、这种责任感带来的情绪影响，以及这对寻求帮助的影响至关重要。
