Tichler Anna, Hertroijs Dorijn F L, Ruwaard Dirk, Brouwers Martijn C G J, Hiligsmann Mickaël, de Jong Judith D, Elissen Arianne M J
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences (FHML), Maastricht University, Maastricht, the Netherlands.
Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, the Netherlands.
Patient Prefer Adherence. 2023 Mar 17;17:719-729. doi: 10.2147/PPA.S397647. eCollection 2023.
Greater knowledge of individuals' needs and preferences can enhance shared decision-making, which is associated with improved quality of decisions and increased satisfaction. This study aimed to identify and prioritize the attributes (ie conversation topics) that individuals with type 2 diabetes find it most important to discuss with their healthcare provider regarding treatment decisions.
First, small group interviews were organized with adults with type 2 diabetes (N=8) treated in primary care to identify the attributes that they find important to discuss regarding treatment decisions. A five-step nominal group technique was applied during the interviews. An object best-worst scaling (BWS) survey was subsequently distributed to individuals with self-reported diabetes participating in the Dutch Health Care Consumer Panel of the Netherlands Institute for Health Services Research (N=600) to determine the relative importance score (RIS) of the identified attributes. A higher RIS indicates a higher level of perceived importance. Subgroup and latent class analyses were performed to explore whether individuals' demographic and disease characteristics influenced their attribute preferences.
A total of 21 attributes were identified during three small group interviews with individuals with type 2 diabetes. Respondents in the BWS survey (N=285) viewed "quality of life" (RIS=11.97), "clinical outcomes" (RIS=10.40), "long-term diabetes complications" (RIS=9.83) and "short-term adverse medication" (RIS=7.72) as the most important in the decision-making process for the treatment of type 2 diabetes. Some differences in attribute preferences were identified according to demographic and disease characteristics.
In general, individuals with type 2 diabetes not only want to discuss the biological effects of treatments, but also the impact of treatment on their quality of life. Healthcare providers should be aware that attributes are viewed differently by different individuals. This emphasizes the need for tailor-made healthcare decisions, which means eliciting and responding to individual preferences in the decision-making process.
更深入了解个体的需求和偏好能够加强共同决策,而共同决策与更高质量的决策以及更高的满意度相关。本研究旨在确定2型糖尿病患者认为在与医疗服务提供者讨论治疗决策时最重要的属性(即谈话主题)并对其进行优先级排序。
首先,组织了针对在初级医疗中接受治疗的成年2型糖尿病患者(N = 8)的小组访谈,以确定他们认为在治疗决策讨论中重要的属性。访谈期间应用了五步名义小组技术。随后,向参与荷兰卫生服务研究机构荷兰医疗保健消费者小组的自我报告患有糖尿病的个体(N = 600)发放了对象最佳-最差尺度(BWS)调查问卷,以确定所识别属性的相对重要性得分(RIS)。较高的RIS表明感知重要性水平较高。进行亚组和潜在类别分析以探索个体的人口统计学和疾病特征是否影响他们对属性的偏好。
在对2型糖尿病患者进行的三次小组访谈中,共识别出21个属性。BWS调查中的受访者(N = 285)认为“生活质量”(RIS = 11.97)、“临床结局”(RIS = 10.40)、“糖尿病长期并发症”(RIS = 9.83)和“短期药物不良反应”(RIS = 7.72)在2型糖尿病治疗决策过程中最为重要。根据人口统计学和疾病特征确定了属性偏好方面的一些差异。
一般而言,2型糖尿病患者不仅希望讨论治疗的生物学效应,还希望讨论治疗对其生活质量的影响。医疗服务提供者应意识到不同个体对属性的看法不同。这强调了量身定制医疗决策的必要性,即在决策过程中引出并回应个体偏好。