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本文引用的文献

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'Should I Buy Her a Doll'? Motherhood and Turner Syndrome in Poland.“我应该给她买个娃娃吗?”波兰的母亲身份与特纳综合征。
Med Anthropol. 2023 Feb 17;42(2):177-190. doi: 10.1080/01459740.2023.2170797. Epub 2023 Jan 27.
2
Transitions to adulthood: self-governance and disciplining in the making of patient citizens.过渡到成年期:自我管理和纪律约束在造就有责任感的公民过程中的作用。
Sociol Health Illn. 2020 Mar;42(3):481-495. doi: 10.1111/1467-9566.13019. Epub 2019 Oct 30.
3
Risky, early, controversial. Puberty in medical discourses.有风险、过早、存在争议。医学话语中的青春期。
Soc Sci Med. 2015 Oct;143:287-96. doi: 10.1016/j.socscimed.2014.11.018. Epub 2014 Nov 11.
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The pharmaceuticalisation of society? A framework for analysis.社会的药物化?一个分析框架。
Sociol Health Illn. 2011 Jul;33(5):710-25. doi: 10.1111/j.1467-9566.2011.01320.x. Epub 2011 Mar 4.
5
In the vanguard of biomedicine? The curious and contradictory case of anti-ageing medicine.走在生物医学的前沿?抗衰老医学的奇特而矛盾案例。
Sociol Health Illn. 2010 Feb 1;32(2):197-210. doi: 10.1111/j.1467-9566.2009.01212.x. Epub 2009 Dec 9.
6
Human growth hormone and the temptations of biomedical enhancement.
Sociol Health Illn. 2004 Mar;26(2):184-215. doi: 10.1111/j.1467-9566.2004.00386.x.
7
Doing health, doing gender: teenagers, diabetes and asthma.践行健康,践行性别平等:青少年、糖尿病与哮喘
Soc Sci Med. 2000 Feb;50(3):387-96. doi: 10.1016/s0277-9536(99)00340-8.
8
Cultural significance and physiological manifestations of menopause. A biocultural analysis.更年期的文化意义与生理表现。一项生物文化分析。
Cult Med Psychiatry. 1986 Mar;10(1):47-71. doi: 10.1007/BF00053262.

非正统的身体?特纳综合征与年龄、性别和代际地位的无声互动

Illegitimate bodies? Turner syndrome and the silent interplay of age, gender, and generational positions.

作者信息

Diasio Nicoletta

机构信息

Faculty of Social Sciences, University of Strasbourg, Laboratoire interdisciplinaire en ètudes culturelles (UMR CNRS 7069), Institut Universitaire de France, Strasbourg, France.

出版信息

Front Sociol. 2023 Mar 8;8:1084707. doi: 10.3389/fsoc.2023.1084707. eCollection 2023.

DOI:10.3389/fsoc.2023.1084707
PMID:36968511
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10030844/
Abstract

This paper focuses on the strength of social norms that define the right development of the body in time. It also analyzes how the social positions of age, gender and generation intertwine in the definition of such a legitimate body. The starting point is anthropological research carried out in France between 2018 and 2020 among girls and women affected by Turner syndrome, a rare genetic condition causing small stature, ovarian insufficiency, a delay or absence of puberty, and infertility. We first explore how measuring the body has become central in the social construction of the concept of age-appropriateness. We then present four women' narratives, which express various forms of desynchronization: the gap between physical appearance, chronological age and age status; the cleft between the physical development induced by hormone therapy and being in a particular stage in life; the difference between chronological and reproductive age; and lastly, the trouble in a generational position related to infertility. For women suffering from this genetic condition, the gap between bodies, time and social statuses associated with age, gender and generation, may engender a feeling of "being out of place." The alignment of body and time is then one of the bastions of essentialization and naturalization. Finally, we stress the complex interplay of bodily and social markers of age and gender, and their role in social relations as both a resource and a constraint. Thus, while the syndrome may cause distress and sometimes a lack of legitimacy, it also leads to a critical re-examination of hegemonic models of womanhood and their intersection with age positions.

摘要

本文聚焦于界定身体适时正确发育的社会规范的力量。它还分析了年龄、性别和代际的社会地位在界定这样一个合法身体的过程中是如何相互交织的。出发点是2018年至2020年在法国对受特纳综合征影响的女孩和妇女进行的人类学研究,特纳综合征是一种罕见的遗传疾病,会导致身材矮小、卵巢功能不全、青春期延迟或缺失以及不孕不育。我们首先探讨测量身体如何在年龄适宜性概念的社会建构中变得至关重要。然后我们呈现四位女性的叙述,这些叙述表达了各种不同步的形式:外表、实足年龄和年龄地位之间的差距;激素疗法引起的身体发育与处于生命特定阶段之间的裂痕;实足年龄与生育年龄之间的差异;最后是与不孕不育相关的代际位置上的困扰。对于患有这种遗传疾病的女性来说,身体、时间以及与年龄、性别和代际相关的社会地位之间的差距,可能会产生一种“格格不入”的感觉。身体与时间的契合于是成为本质化和自然化的堡垒之一。最后,我们强调年龄和性别的身体标记与社会标记之间复杂的相互作用,以及它们在社会关系中作为一种资源和一种限制因素所起的作用。因此,虽然这种综合征可能会导致痛苦,有时还会导致缺乏合法性,但它也会引发对霸权女性气质模式及其与年龄位置交叉点的批判性重新审视。