Public Health, Environments and Society, Faculty of Public Health and Policy, London School of Hygiene and Tropical Medicine, London, UK.
Sociol Health Illn. 2020 Mar;42(3):481-495. doi: 10.1111/1467-9566.13019. Epub 2019 Oct 30.
Young people develop new behaviours and redefine their identities during health transitions when they move from paediatric to adult healthcare environments. Their identities help to guide their health-related actions in response to life changes. Young people's health is increasingly recognised as important, yet we lack understanding of how health transitions shape identities and how they relate to other transitions to adulthood. We conducted a longitudinal interview study with young people with sickle cell disease to explore how young people define new identities as they transition to adulthood. We show how 'disciplining at a distance' via healthcare self-management discourses and neoliberal norms governing adolescence play out in the tensions participants encounter when they are crafting new identities. Health transitions involve struggles to negotiate competing demands for self-discipline. It is crucial to create enabling spaces for young people to protect their health while still developing identities that help them achieve life goals.
年轻人在从儿科到成人医疗保健环境的健康过渡期间会形成新的行为模式并重新定义自己的身份。他们的身份有助于指导他们针对生活变化采取与健康相关的行动。年轻人的健康越来越受到重视，但我们对健康过渡如何塑造身份以及它们与成年期的其他过渡有何关联缺乏了解。我们对患有镰状细胞病的年轻人进行了一项纵向访谈研究，以探讨年轻人在向成年期过渡时如何定义新的身份。我们展示了通过医疗保健自我管理话语和规范青春期的新自由主义规范进行“远程约束”如何在参与者在塑造新身份时遇到的紧张局势中发挥作用。健康过渡涉及到为了协商自我约束的相互竞争的需求而进行的斗争。为年轻人创造有利的空间以保护他们的健康，同时发展有助于他们实现人生目标的身份至关重要。
