LeMasters Katherine, Maragh-Bass Allysha, Stoner Marie, Bhushan Nivedita, Mitchell John, Riggins Linda, Lightfoot Alexandra
Department of Epidemiology, Gillings School of Global Public Health, University of North Carolina at Chapel Hill; Center for Health Equity Research, Department of Social Medicine, School of Medicine, University of North Carolina at Chapel Hill.
FHI 360.
J Particip Res Methods. 2022;3(3-themed Special Issue). doi: 10.35844/001c.38385. Epub 2022 Oct 24.
Mitigating HIV burden among Black youth requires true community engagement. This brief report identifies challenges, strategies, and lessons learned from transitioning our three-phased, community-engaged HIV prevention project with Black youth to a remote format during COVID-19. The project involved (1) building a community-academic partnership on youth sexual health, (2) participatory youth workshops, and (3) youth surveys and interviews about HIV prevention. Feedback from community-academic partnership, pile sorting themes, and preliminary qualitative analyses guided this report. Challenges included a disruption to in-person engagement while strategies included relying heavily on pre-existing partnerships to recruit youth for interviews. We learned that pre-existing community engagement was essential for completing phase three remotely. More education is needed to support Pre-Exposure Prophylaxis (PrEP) awareness for HIV prevention and there is a need to address structural barriers to healthcare engagement such as community violence and mental illness. Community-engaged HIV research focused on youth can adapt if anchored in community relationships. Future studies must work to more fully center youth's voices and address the structural issues that may inhibit them from engaging in HIV prevention.
减轻黑人青年的艾滋病毒负担需要真正的社区参与。本简要报告确定了在新冠疫情期间将我们与黑人青年开展的三阶段社区参与式艾滋病毒预防项目转变为远程模式过程中所面临的挑战、策略和经验教训。该项目包括:(1)建立关于青年性健康的社区-学术伙伴关系;(2)参与式青年工作坊;(3)关于艾滋病毒预防的青年调查和访谈。来自社区-学术伙伴关系的反馈、分类主题梳理以及初步定性分析为撰写本报告提供了指导。挑战包括面对面参与活动的中断,而策略包括严重依赖现有的伙伴关系来招募青年进行访谈。我们了解到,现有的社区参与对于远程完成第三阶段工作至关重要。需要开展更多教育以提高对艾滋病毒预防的暴露前预防(PrEP)的认识,并且有必要消除参与医疗保健的结构性障碍,如社区暴力和精神疾病。以青年为重点的社区参与式艾滋病毒研究如果以社区关系为基础就能进行调整。未来的研究必须努力更充分地突出青年的声音,并解决可能阻碍他们参与艾滋病毒预防的结构性问题。