Cesur Sidika, Ciprut Ayca, Terlemez Sengul
Istanbul Medeniyet University Faculty of Health Sciences, Department of Audiology, Istanbul, Turkey.
Marmara University Faculty of Medicine, Department of Audiology, Istanbul, Turkey.
Medeni Med J. 2023 Mar 28;38(1):78-87. doi: 10.4274/MMJ.galenos.2023.35305.
The aim of this study was to evaluate the improvements in quality of life and auditory performance via a descriptive report using patient-related outcomes measures in a group of children with cochlear implants (CI).
This was a longitudinal and retrospective study based on the analysis of patient records of a total of 28 children with CI, 18 of whom had bilateral (64.3%) and 10 had unilateral (35.7%). The study included repeated within-subject measures of Hearing Implants Quality of Life (CuHI-QoL), Categories of Auditory Performance (CAP-II), Speech, Spatial, and Qualities of Hearing scale-Parents' version (SSQ-P) scales, and Implant Recipient Follow-up (IRF) form at 6-month intervals from baseline up to 24 months.
During the 2-year follow-up assessments, all children with CI showed statistically significant improvement over time in their CAPII, SSQ-P, CuHI-QoL, and IRF scores (p<0.001). The most significant increase in scores occurred within the first six months following the baseline and then continued to increase gradually at a slower pace over time. A moderate negative relationship was found between the age of implantation and SSQ-P and family satisfaction scores of IRF (p<0.05).
Family expectations, overall well-being, quality of life, auditory, and verbal skills increase positively with earlier CI intervention. Moreover, the subjective assessment results showed that parents-positive attitudes toward implantation, and willingness to recommend it to others have steadily increased in time. Although the cohort is relatively small and variable, the results offer a descriptive view to outcomes in real-world practice.
本研究的目的是通过使用与患者相关的结局指标的描述性报告,评估一组人工耳蜗植入(CI)儿童的生活质量和听觉表现的改善情况。
这是一项纵向回顾性研究,基于对总共28名CI儿童的患者记录进行分析,其中18名(64.3%)为双侧植入,10名(35.7%)为单侧植入。该研究包括从基线开始至24个月,每隔6个月对听力植入生活质量(CuHI-QoL)、听觉表现类别(CAP-II)、言语、空间和听力质量量表-家长版(SSQ-P)量表以及植入接受者随访(IRF)表进行重复的受试者内测量。
在2年的随访评估中,所有CI儿童的CAPII、SSQ-P、CuHI-QoL和IRF评分随时间均有统计学意义的显著改善(p<0.001)。评分的最显著增加发生在基线后的前6个月内,然后随着时间的推移以较慢的速度继续逐渐增加。发现植入年龄与SSQ-P以及IRF的家庭满意度评分之间存在中度负相关(p<0.05)。
早期CI干预可使家庭期望、总体幸福感、生活质量、听觉和言语技能得到积极提高。此外,主观评估结果表明,家长对植入的积极态度以及向他人推荐植入的意愿随时间稳步增加。尽管该队列相对较小且存在差异,但研究结果为现实世界实践中的结局提供了一个描述性视角。