RAND Corporation, Boston, MA 02116, USA.
RAND Corporation, Arlington, VA, USA.
J Comp Eff Res. 2023 May;12(5):e220097. doi: 10.57264/cer-2022-0097. Epub 2023 Mar 28.
We developed the Patient-Engaged Health Technology Assessment strategy for survey-based goal collection from patients to yield patient-important outcomes suitable for use in multi-criteria decision analysis. Rheumatoid arthritis patients were recruited from online patient networks for proof-of-concept testing of goal collection and prioritization using a survey. A Project Steering Committee and Expert Panel rated the feasibility of scaling to larger samples. Survey respondents (n = 47) completed the goal collection exercise. Finding effective treatments was rated by respondents as the most important goal, and reducing stiffness was rated as the least important. Feedback from our steering committee and expert panel support the approach's feasibility for goal identification and ranking. Goals relevant for treatment evaluation can be identified and rated for importance by patients to permit wide input from patients with lived experience of disease.
我们制定了患者参与的卫生技术评估策略，用于从患者那里收集基于调查的目标，以产生适合多准则决策分析使用的患者重要结局。招募了来自在线患者网络的类风湿关节炎患者，使用调查对目标收集和优先级排序进行概念验证测试。项目指导委员会和专家小组对扩大样本规模的可行性进行了评估。调查受访者（n=47）完成了目标收集练习。受访者认为寻找有效治疗方法是最重要的目标，而减少僵硬被认为是最不重要的目标。来自我们指导委员会和专家小组的反馈支持了该方法在目标识别和排序方面的可行性。可以通过患者识别和对重要性进行评分，确定与治疗评估相关的目标，从而允许有疾病生活经历的患者广泛参与。
