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接受照顾者-患者支持以帮助拉丁裔应对晚期癌症(CASA)干预:照顾者案例研究。

Acceptance of Caregiver-Patient Support to Latinx Coping with Advanced Cancer (CASA) Intervention: A Caregiver Case Study.

机构信息

School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico.

Ponce's Research Institute, Ponce Health Sciences University, Ponce 00716, Puerto Rico.

出版信息

Int J Environ Res Public Health. 2023 Mar 12;20(6):4996. doi: 10.3390/ijerph20064996.

Abstract

Latinos frequently assume caregiver roles when the need arises in their social nucleus. Because of their active role, caregivers are heavily involved in their family member's cancer trajectory. Therefore, there is a need for culturally adapted interventions that integrate the caregiver and cancer patient. The objective is to present a case study of a former caregiver's experience and acceptance of the cultural adaptation of Caregiver-Patient Support to Latinx Coping with Advanced Cancer (CASA) intervention. We conducted a case study with a male caregiver between the ages of 20 and 30. A male caregiver expressed his experience and acceptance of a psychosocial intervention. He conveyed moderate to high acceptance of intervention components through anecdotes and opinions based on his experiences as a caregiver for multiple family members. Finally, he reported distress, but he presented little to no symptoms of caregiver burden, depression, anxiety, and hopelessness. It is crucial to culturally adapt interventions that integrate caregivers when they play a big part in their loved one's cancer journey. Integrating their perspective when adapting an intervention may assist in providing essential information that will benefit the patient and caregiver.

摘要

拉丁裔在其社交核心中出现需要时,经常会承担照顾者的角色。由于他们的积极作用,照顾者会大量参与其家庭成员的癌症治疗过程。因此,需要进行文化适应的干预措施,将照顾者和癌症患者整合在一起。本研究的目的是展示一个案例研究,即一名前照顾者对文化适应照顾者-患者支持拉丁裔应对晚期癌症(CASA)干预措施的经验和接受程度。我们对一名年龄在 20 至 30 岁之间的男性照顾者进行了案例研究。一名男性照顾者表达了他对心理社会干预的经验和接受程度。他通过基于自己作为多名家庭成员的照顾者的经历的轶事和意见,表达了对干预措施的中等至高度接受。最后,他报告了困扰,但他几乎没有表现出照顾者负担、抑郁、焦虑和绝望的症状。当照顾者在他们所爱的人的癌症治疗过程中扮演重要角色时,对干预措施进行文化适应是至关重要的。在适应干预措施时整合他们的观点,可以帮助提供对患者和照顾者都有益的重要信息。

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