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晚期癌症的拉丁裔患者及其照护者关注的重要临终议题。

Important End-of-Life Topics among Latino Patients and Caregivers Coping with Advanced Cancer.

机构信息

School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico.

Ponce's Research Institute, Ponce Health Sciences University, Ponce 00716, Puerto Rico.

出版信息

Int J Environ Res Public Health. 2022 Jul 23;19(15):8967. doi: 10.3390/ijerph19158967.

Abstract

There is a known end-of-life related disparity among Latino individuals, and there is a need to develop culturally sensitive interventions to help patients and caregivers cope with advanced cancer. Latino patients and caregivers coping with advanced cancer were asked to list important end-of-life topics to culturally inform a psychosocial intervention adaptation process. A qualitative study was conducted, and semi-structured interviews were performed, audio-recorded, and transcribed. Recordings and transcriptions were reviewed and analyzed using thematic content coding. The semi-structured interview described and demonstrated intervention components and elicited feedback about each. Free listing method was used to assess important topics among Latino advanced cancer patients ( = 14; stage III and IV) and caregivers. Patients and caregivers were given a list of 15 topics and asked which topics they deemed important to integrate into the intervention. Overall, more than half of the participants considered it important to include 13 of the 15 topics related to daily activities (eight subcategories), psychosocial support (three subcategories), discussing diagnosis and support (three subcategories), and financial difficulties (one subcategory). Patient-caregivers reported importance in most end-of-life topics. Future research and intervention development should include topics related to psychosocial support, daily activities, discussing diagnosis and support, and financial difficulties.

摘要

拉丁裔个体在临终相关方面存在已知的差异,因此需要开发文化敏感性干预措施,以帮助患者和护理人员应对晚期癌症。要求拉丁裔晚期癌症患者和护理人员列出重要的临终话题,以为心理社会干预适应过程提供文化信息。进行了一项定性研究,并进行了半结构化访谈,进行了录音和转录。使用主题内容编码对录音和转录进行了审查和分析。半结构化访谈描述并展示了干预措施的组成部分,并对每个组成部分进行了反馈。自由列表法用于评估拉丁裔晚期癌症患者(n=14;III 期和 IV 期)和护理人员的重要话题。患者和护理人员收到了一份包含 15 个话题的清单,并被要求选择他们认为重要的话题纳入干预措施。总体而言,超过一半的参与者认为将与日常活动(八个亚类)、心理社会支持(三个亚类)、讨论诊断和支持(三个亚类)以及财务困难(一个亚类)相关的 13 个话题纳入干预措施非常重要。患者和护理人员报告了大多数临终话题的重要性。未来的研究和干预措施的发展应该包括与心理社会支持、日常活动、讨论诊断和支持以及财务困难相关的话题。

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