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沙特阿拉伯家长对自闭症服务的看法:十年比较(2011 - 2021年)

Parental perspectives on autism services in Saudi Arabia: Decade comparison (2011-2021).

作者信息

Almasoud Hanan, Ain Ganiah

机构信息

King Saud University, Riyadh 11451, Saudi Arabia.

出版信息

Res Dev Disabil. 2023 Jun;137:104485. doi: 10.1016/j.ridd.2023.104485. Epub 2023 Mar 28.

Abstract

In 2004, Saudi Arabia began providing services to individuals with Autism Spectrum Disorder (ASD) and their families. There are no studies-based on the researchers' knowledge-that have aimed to measure the improvement of services provided since 2004. Therefore, this study sought to determine the extent to which services for individuals with ASD have improved from the perspective of parents. The level of improvement was determined by comparing the two time periods (2011 and 2021). This is the first study in the country to assess parental perspectives on this topic at two time points. A questionnaire was administered to 118 parents/caregivers of children with ASD. The questions were designed to determine parents' perceptions of the quality of support received from public services, level of community awareness concerning ASD, and factors influencing the support required to care for their children. The results established that some of the problems faced in 2011 were still present in 2021, and highlighted improvements in 2021.

摘要

2004年,沙特阿拉伯开始为自闭症谱系障碍(ASD)患者及其家庭提供服务。据研究人员所知,尚无旨在衡量自2004年以来所提供服务改善情况的研究。因此,本研究旨在从家长的角度确定为ASD患者提供的服务改善程度。通过比较两个时间段(2011年和2021年)来确定改善水平。这是该国第一项在两个时间点评估家长对该主题看法的研究。对118名ASD儿童的家长/照顾者进行了问卷调查。这些问题旨在确定家长对从公共服务获得的支持质量的看法、社区对ASD的认知水平以及影响照顾其子女所需支持的因素。结果表明,2011年面临的一些问题在2021年仍然存在,并突出了2021年的改善情况。

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