Department of Special Education, College of Education, King Saud University, Riyadh, Saudi Arabia.
Res Dev Disabil. 2024 Sep;152:104799. doi: 10.1016/j.ridd.2024.104799. Epub 2024 Jul 12.
Research indicates that the deficits in social communication and the repetitive, restrictive behaviour of persons with Autistic Spectrum Disorder (ASD) can pose challenges to their functioning in different Quality of Life (QoL) domains, leading to lower levels of life satisfaction. Evidence also indicates that various social and family factors, such as the support received in the community/environment and the composition of the family, could impact the QoL of persons with ASD.
To study the factors influencing the QoL of children with ASD in the Kingdom of Saudi Arabia (KSA) by investigating the perspectives of their parents.
Questionnaires were completed by 110 parents who had a child with ASD. The questionnaire included the 96-item KidsLife-ASD scale to capture parents' perspectives regarding the difficulties experienced by their child, the ASD support received by their families, and the QoL of the child. The data obtained from the questionnaire were statistically analysed using IBM SPSS software.
The difficulties experienced by children with ASD and aspects of the support (services and interventions, and challenges) they receive are factors that influence the QoL of children with ASD in the KSA. Moreover, the number of children in the family, the birth order of child with ASD, and the severity of ASD symptoms are factors that influence parents' perceptions of their children's difficulties, family ASD support, and the child's QoL.
Saudi parents who have one child with ASD believed that the QoL of their child was high and confirmed that the difficulties experienced by the child and the support received by the family were factors which influenced the QoL of a child with ASD.
研究表明，自闭症谱系障碍（ASD）患者在社会交往和重复、受限行为方面的缺陷会对其在不同生活质量（QoL）领域的功能造成挑战，导致生活满意度降低。有证据表明，各种社会和家庭因素，如在社区/环境中获得的支持以及家庭的组成，可能会影响 ASD 患者的生活质量。
通过调查父母的观点，研究影响沙特阿拉伯王国（KSA）自闭症儿童生活质量的因素。
110 名自闭症儿童的父母完成了问卷。问卷包括 96 项儿童生活质量-自闭症量表，以捕捉父母对孩子所经历困难的看法、家庭接受的自闭症支持以及孩子的生活质量。使用 IBM SPSS 软件对从问卷中获得的数据进行了统计分析。
自闭症儿童所经历的困难以及他们所接受的支持（服务和干预措施，以及挑战）方面的因素会影响 KSA 自闭症儿童的生活质量。此外，家庭中孩子的数量、自闭症儿童的出生顺序和 ASD 症状的严重程度也是影响父母对孩子困难、家庭 ASD 支持和孩子生活质量的看法的因素。
只有一个自闭症孩子的沙特父母认为他们孩子的生活质量很高，并证实孩子所经历的困难和家庭所获得的支持是影响自闭症儿童生活质量的因素。
