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The helping older people engage (HOPE) study: Protocol & COVID modifications for a randomized trial.帮助老年人参与(HOPE)研究:一项随机试验的方案及针对新冠疫情的调整
Contemp Clin Trials Commun. 2022 Nov 30;30:101040. doi: 10.1016/j.conctc.2022.101040. eCollection 2022 Dec.
2
Loneliness, social isolation, and social support in older adults with active cancer during the COVID-19 pandemic.老年癌症患者在 COVID-19 大流行期间的孤独感、社会隔离和社会支持。
J Geriatr Oncol. 2022 Nov;13(8):1122-1131. doi: 10.1016/j.jgo.2022.08.003. Epub 2022 Aug 18.
3
Trial Forge Guidance 3: randomised trials and how to recruit and retain individuals from ethnic minority groups-practical guidance to support better practice.试验锻造指南 3:随机试验以及如何招募和保留少数民族个体——支持更好实践的实用指南。
Trials. 2022 Aug 17;23(1):672. doi: 10.1186/s13063-022-06553-w.
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Assessing Meaningful Community Engagement: A Conceptual Model to Advance Health Equity through Transformed Systems for Health: Organizing Committee for Assessing Meaningful Community Engagement in Health & Health Care Programs & Policies.评估有意义的社区参与:通过变革性卫生系统促进健康公平的概念模型:卫生与医疗保健项目及政策中有意义的社区参与评估组织委员会
NAM Perspect. 2022 Feb 14;2022. doi: 10.31478/202202c. eCollection 2022.
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Lessons Learned in Clinical Research Recruitment of Midlife Latinas During COVID-19.在 COVID-19 期间招募中年拉丁裔女性参与临床研究的经验教训。
Menopause. 2022 Jul 1;29(7):883-888. doi: 10.1097/GME.0000000000001983.
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Including ethnic minorities in dementia research: Recommendations from a scoping review.将少数民族纳入痴呆症研究:一项范围综述的建议
Alzheimers Dement (N Y). 2022 Apr 29;8(1):e12222. doi: 10.1002/trc2.12222. eCollection 2022.
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The Digital Divide Exacerbates Disparities in Latinx Recruitment for Alzheimer's Disease and Related Dementias Online Education During COVID-19.数字鸿沟加剧了拉丁裔群体在新冠疫情期间参与阿尔茨海默病及相关痴呆症在线教育招募方面的差距。
Gerontol Geriatr Med. 2022 Mar 1;8:23337214221081372. doi: 10.1177/23337214221081372. eCollection 2022 Jan-Dec.
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Promoting Social Connection in Dementia Caregivers: A Call for Empirical Development of Targeted Interventions.促进痴呆症照护者的社交联系:呼吁对有针对性的干预措施进行实证研究。
Gerontologist. 2022 Oct 19;62(9):1258-1265. doi: 10.1093/geront/gnac032.
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Loneliness, Social Isolation, and All-Cause Mortality in a Large Sample of Older Adults.孤独、社会隔离与老年人全因死亡率的相关性研究——一项基于大样本人群的研究
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Addressing the disparities in dementia risk, early detection and care in Latino populations: Highlights from the second Latinos & Alzheimer's Symposium.解决拉丁裔人群中痴呆症风险、早期检测和护理方面的差异:第二届拉丁裔与阿尔茨海默病研讨会的重点。
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在新冠疫情期间招募社会孤立的拉丁裔照顾阿尔茨海默病及相关痴呆症患者:经验教训

Recruiting Socially Disconnected Latinos Caring for a Person with Alzheimer's Disease and Related Dementias During the COVID-19 Pandemic: Lessons Learned.

作者信息

Quiñones Maria M, Silva Caroline, Ross Carmona, Sörensen Silvia, Serrano Raquel, Van Orden Kimberly, Heffner Kathi

机构信息

Elaine C. Hubbard Center for Nursing Research on Aging School of Nursing, University of Rochester Medical Center, New York, USA.

Department of Psychiatry, University of Rochester Medical Center, New York, USA.

出版信息

Clin Gerontol. 2023 Apr 2:1-14. doi: 10.1080/07317115.2023.2197895.

DOI:10.1080/07317115.2023.2197895
PMID:37005703
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10542654/
Abstract

OBJECTIVES

The purpose of this article is to present conceptual and methodological challenges to recruitment strategies in enrolling socially disconnected middle-aged and older Latino caregivers of a loved one with Alzheimer's disease and related dementias (ADRD).

METHODS

Middle-aged and older Latino ADRD caregivers were recruited into two early stage, intervention development studies during the COVID-19 pandemic via online or in-person methods. Recruitment criteria included Latino ADRD caregivers over the age of 40 reporting elevated loneliness on the UCLA 3-item Loneliness Scale (LS) during screening.

RESULTS

Middle-aged, Latino caregivers were recruited predominantly from online methods whereas older caregivers were mostly recruited from in-person methods. We report challenges identifying socially disconnected Latino caregivers using the UCLA 3-item LS.

CONCLUSIONS

Our findings support previously reported disparities in recruitment by age and language and suggest further methodological considerations to assess social disconnection among Latino caregivers. We discuss recommendations to overcome these challenges in future research.

CLINICAL IMPLICATIONS

Socially disconnected Latino ADRD caregivers have an elevated risk for poor mental health outcomes. Successful recruitment of this population in clinical research will ensure the development of targeted and culturally sensitive interventions to improve the mental health and overall well-being of this marginalized group.

摘要

目的

本文旨在探讨在招募患有阿尔茨海默病及相关痴呆症(ADRD)的社会孤立的拉丁裔中年及老年护理人员时,招募策略所面临的概念和方法上的挑战。

方法

在新冠疫情期间,通过线上或线下方式,将拉丁裔中年及老年ADRD护理人员招募到两项早期干预开发研究中。招募标准包括年龄在40岁以上、在筛查时使用加州大学洛杉矶分校3项孤独量表(LS)报告孤独感较高的拉丁裔ADRD护理人员。

结果

中年拉丁裔护理人员主要通过线上方式招募,而老年护理人员大多通过线下方式招募。我们报告了使用加州大学洛杉矶分校3项孤独量表识别社会孤立的拉丁裔护理人员时遇到的挑战。

结论

我们的研究结果支持了之前报道的在招募方面存在的年龄和语言差异,并建议在评估拉丁裔护理人员的社会孤立状况时进一步考虑方法问题。我们讨论了在未来研究中克服这些挑战的建议。

临床意义

社会孤立的拉丁裔ADRD护理人员心理健康状况不佳的风险较高。在临床研究中成功招募这一人群将确保开发出有针对性的、对文化敏感的干预措施,以改善这一边缘化群体的心理健康和整体幸福感。