在混乱和匮乏时期应对——COVID-19 患者重症期间家庭成员的体验：一项定性研究。
Coping in times of disruption and deprivation-Experiences of family members during COVID-19 patients' critical illness: A qualitative study.
机构信息
Division of Emergencies and Critical Care, Department of Postoperative and Intensive Care Nursing, Oslo University Hospital, Oslo, Norway.
Department of Health and Care Sciences, Faculty of Health Sciences, UiT The Arctic University of Norway, Tromsø, Norway.
出版信息
Nurs Open. 2023 Jul;10(7):4825-4837. doi: 10.1002/nop2.1734. Epub 2023 Apr 2.
AIM
To explore the experiences and needs of family members during the course of COVID-19 critical illness from onset to rehabilitation.
DESIGN
An exploratory qualitative study.
METHODS
Twelve family members of surviving critically ill COVID-19 patients and restricted from visiting the patients, were interviewed digitally. Reflexive thematic analysis was used.
RESULTS
Three themes were generated from the data; 'Experiencing a double burden', 'Becoming an insignificant other' and 'Regaining significance'. Family members were often ill themselves, which represented an extra burden when the patient deteriorated. From admission, the family members became bystanders, deprived of most contact with the patients, as communication and information from the intensive care unit appeared unstructured and haphazard. However, when patients were discharged, great responsibility was placed on the family members.
目的
探讨 COVID-19 危重症患者从发病到康复过程中家庭成员的经历和需求。
设计
探索性定性研究。
方法
对 12 名因 COVID-19 而病重、限制探视的幸存患者的家属进行数字访谈。采用反思性主题分析。
结果
从数据中产生了三个主题；“双重负担的体验”、“成为无足轻重的人”和“重新获得意义”。当患者病情恶化时，家属往往自己也生病了，这代表着额外的负担。从住院开始，家庭成员就成了旁观者，与患者的大部分接触都被剥夺了，因为来自重症监护病房的沟通和信息显得没有条理和随意。然而，当患者出院时，巨大的责任就落在了家属身上。
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