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《21世纪治愈法案》的美国国家协调员办公室规则:对青少年护理和保密保护的影响。

21st Century Cures Act ONC Rule: Implications for Adolescent Care and Confidentiality Protections.

作者信息

Pasternak Ryan H, Alderman Elizabeth M, English Abigail

机构信息

Department of Pediatrics, Louisiana State University School of Medicine, New Orleans, Louisiana.

Children's Hospital New Orleans, New Orleans, Louisiana.

出版信息

Pediatrics. 2023 Apr 1;151(Suppl 1). doi: 10.1542/peds.2022-057267K.

Abstract

Ensuring the confidentiality and protection of health information is the standard of care for adolescents. In 2023 and beyond, the protection of personal health information is more critical than ever. The 21st Century Cures Act Office of the National Coordinator for Health Information Technology Rule, with its requirements for the broad sharing of electronic health information and ban on "information blocking," poses serious concerns for confidentiality in adolescent health care delivery. The coronavirus disease 2019 pandemic has rapidly increased the use of telehealth and, thereby, patient portal use for adolescent health records, increasing risks for disclosure. Understanding the legal and clinical underpinnings for confidential adolescent health services and the clinical challenges and health information technology limitations presented by the Office of the National Coordinator for Health Information Technology Rule is key to providing quality adolescent health services while implementing the Rule. A framework is presented to facilitate decision-making in individual cases by clinicians.

摘要

确保青少年健康信息的保密性和安全性是医疗护理的标准。在2023年及以后,个人健康信息的保护比以往任何时候都更加关键。《21世纪治愈法案》中卫生信息技术国家协调员办公室规则要求广泛共享电子健康信息并禁止“信息封锁”,这给青少年医疗服务中的保密性带来了严重问题。2019冠状病毒病大流行迅速增加了远程医疗的使用,从而也增加了青少年健康记录的患者门户使用,增加了信息泄露的风险。了解青少年保密健康服务的法律和临床基础,以及卫生信息技术国家协调员办公室规则所带来的临床挑战和健康信息技术限制,是在实施该规则的同时提供高质量青少年健康服务的关键。本文提出了一个框架,以方便临床医生在个别案例中进行决策。

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