End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) and Universiteit Gent; Department of Family Medicine and Chronic Care, VUB, Brussels; Department of Public Health and Primary Care, Universiteit Gent, Ghent.
End-of-Life Care Research Group, VUB and Universiteit Gent; Department of Family Medicine and Chronic Care, VUB, Brussels.
Br J Gen Pract. 2023 Apr 27;73(730):e384-e391. doi: 10.3399/BJGP.2022.0100. Print 2023 May.
Advance care planning (ACP) has been characterised as a complex process of communication and decision making. For ACP behaviour change, underlying processes such as self-efficacy and readiness are needed. However, studies about which patient characteristics are associated with ACP have mainly focused on whether ACP actions are completed, leaving behaviour change processes unexplored.
To assess whether patients' characteristics and patient-perceived quality of GP ACP communication were associated with patients' ACP engagement.
Baseline data were used from the ACP-GP cluster-randomised controlled trial in patients with chronic, life-limiting illness ( = 95).
Patients completed questionnaires detailing demographic and clinical characteristics, and their perception about their GPs' ACP information provision and listening. Engagement was measured using the 15-item ACP Engagement Survey, with self-efficacy and readiness subscales. Linear mixed models tested associations with engagement.
Demographic and clinical characteristics were not associated with engagement; nor was how much ACP information patients received from their GP or the extent to which the GP listened to what was important for the patient to live well or important to the patient regarding future care. Higher overall ACP engagement ( = 0.002) and self-efficacy (<0.001) were observed in patients who gave a high rating for the extent to which their GP listened to their worries regarding future health.
This study suggests that GPs providing information about ACP alone is not associated with a patient's ACP engagement; an important element is to listen to patients' worries regarding their future health.
预先医疗照护计划(ACP)被描述为一个复杂的沟通和决策过程。为了实现 ACP 的行为改变,需要有自我效能感和准备就绪等潜在过程。然而,关于哪些患者特征与 ACP 相关的研究主要集中在是否完成了 ACP 行为,而没有探索行为改变过程。
评估患者特征和患者感知的全科医生 ACP 沟通质量是否与患者的 ACP 参与度相关。
使用慢性、生命有限疾病患者的 ACP-GP 群组随机对照试验的基线数据(n=95)。
患者完成了详细描述人口统计学和临床特征的问卷,以及他们对医生提供 ACP 信息和倾听的感知。使用 ACP 参与度调查的 15 项量表来衡量参与度,包括自我效能感和准备就绪子量表。线性混合模型测试了与参与度的关联。
人口统计学和临床特征与参与度无关;患者从医生那里获得的 ACP 信息量或医生倾听对患者生活质量重要的程度或对患者未来护理重要的程度也与参与度无关。患者对医生倾听他们对未来健康担忧的程度给予高度评价时,他们的 ACP 整体参与度(=0.002)和自我效能感(<0.001)更高。
这项研究表明,全科医生单独提供 ACP 信息与患者的 ACP 参与度无关;重要的是要倾听患者对未来健康的担忧。