衡量信息疫情的负担:第五届世界卫生组织信息疫情管理会议方法与结果总结

Measuring the Burden of Infodemics: Summary of the Methods and Results of the Fifth WHO Infodemic Management Conference.

作者信息

Wilhelm Elisabeth, Ballalai Isabella, Belanger Marie-Eve, Benjamin Peter, Bertrand-Ferrandis Catherine, Bezbaruah Supriya, Briand Sylvie, Brooks Ian, Bruns Richard, Bucci Lucie M, Calleja Neville, Chiou Howard, Devaria Abhinav, Dini Lorena, D'Souza Hyjel, Dunn Adam G, Eichstaedt Johannes C, Evers Silvia M A A, Gobat Nina, Gissler Mika, Gonzales Ian Christian, Gruzd Anatoliy, Hess Sarah, Ishizumi Atsuyoshi, John Oommen, Joshi Ashish, Kaluza Benjamin, Khamis Nagwa, Kosinska Monika, Kulkarni Shibani, Lingri Dimitra, Ludolph Ramona, Mackey Tim, Mandić-Rajčević Stefan, Menczer Filippo, Mudaliar Vijaybabu, Murthy Shruti, Nazakat Syed, Nguyen Tim, Nilsen Jennifer, Pallari Elena, Pasternak Taschner Natalia, Petelos Elena, Prinstein Mitchell J, Roozenbeek Jon, Schneider Anton, Srinivasan Varadharajan, Stevanović Aleksandar, Strahwald Brigitte, Syed Abdul Shabbir, Varaidzo Machiri Sandra, van der Linden Sander, Voegeli Christopher, Wardle Claire, Wegwarth Odette, White Becky K, Willie Estelle, Yau Brian, Purnat Tina D

机构信息

US Centers for Disease Control and Prevention Atlanta, GA United States.

Brazilian Inmunization Society São Paulo-SP Brazil.

出版信息

JMIR Infodemiology. 2023 Feb 20;3:e44207. doi: 10.2196/44207. eCollection 2023.

Abstract

BACKGROUND

An infodemic is excess information, including false or misleading information, that spreads in digital and physical environments during a public health emergency. The COVID-19 pandemic has been accompanied by an unprecedented global infodemic that has led to confusion about the benefits of medical and public health interventions, with substantial impact on risk-taking and health-seeking behaviors, eroding trust in health authorities and compromising the effectiveness of public health responses and policies. Standardized measures are needed to quantify the harmful impacts of the infodemic in a systematic and methodologically robust manner, as well as harmonizing highly divergent approaches currently explored for this purpose. This can serve as a foundation for a systematic, evidence-based approach to monitoring, identifying, and mitigating future infodemic harms in emergency preparedness and prevention.

OBJECTIVE

In this paper, we summarize the Fifth World Health Organization (WHO) Infodemic Management Conference structure, proceedings, outcomes, and proposed actions seeking to identify the interdisciplinary approaches and frameworks needed to enable the measurement of the burden of infodemics.

METHODS

An iterative human-centered design (HCD) approach and concept mapping were used to facilitate focused discussions and allow for the generation of actionable outcomes and recommendations. The discussions included 86 participants representing diverse scientific disciplines and health authorities from 28 countries across all WHO regions, along with observers from civil society and global public health-implementing partners. A thematic map capturing the concepts matching the key contributing factors to the public health burden of infodemics was used throughout the conference to frame and contextualize discussions. Five key areas for immediate action were identified.

RESULTS

The 5 key areas for the development of metrics to assess the burden of infodemics and associated interventions included (1) developing standardized definitions and ensuring the adoption thereof; (2) improving the map of concepts influencing the burden of infodemics; (3) conducting a review of evidence, tools, and data sources; (4) setting up a technical working group; and (5) addressing immediate priorities for postpandemic recovery and resilience building. The summary report consolidated group input toward a common vocabulary with standardized terms, concepts, study designs, measures, and tools to estimate the burden of infodemics and the effectiveness of infodemic management interventions.

CONCLUSIONS

Standardizing measurement is the basis for documenting the burden of infodemics on health systems and population health during emergencies. Investment is needed into the development of practical, affordable, evidence-based, and systematic methods that are legally and ethically balanced for monitoring infodemics; generating diagnostics, infodemic insights, and recommendations; and developing interventions, action-oriented guidance, policies, support options, mechanisms, and tools for infodemic managers and emergency program managers.

摘要

背景

信息疫情是指在突发公共卫生事件期间,在数字和实体环境中传播的过量信息,包括虚假或误导性信息。2019冠状病毒病大流行伴随着一场前所未有的全球信息疫情,这导致人们对医疗和公共卫生干预措施的益处产生困惑,对冒险行为和寻求医疗行为产生重大影响,削弱了对卫生当局的信任,并损害了公共卫生应对措施和政策的有效性。需要采取标准化措施,以系统且方法稳健的方式量化信息疫情的有害影响,并协调目前为此目的所探索的高度不同的方法。这可以作为一种基于证据的系统方法的基础,用于在应急准备和预防中监测、识别和减轻未来信息疫情的危害。

目的

在本文中,我们总结了世界卫生组织(WHO)第五次信息疫情管理会议的结构、议程、成果以及拟采取的行动,旨在确定衡量信息疫情负担所需的跨学科方法和框架。

方法

采用迭代式以人为本的设计(HCD)方法和概念图,以促进重点讨论,并产生可采取行动的成果和建议。讨论包括来自世卫组织所有区域28个国家的86名代表不同科学学科和卫生当局的参与者,以及来自民间社会和全球公共卫生实施伙伴的观察员。在整个会议期间,使用了一张主题地图,该地图捕捉了与信息疫情对公共卫生负担的关键促成因素相匹配的概念,以构建讨论并使其背景化。确定了五个立即采取行动的关键领域。

结果

用于评估信息疫情负担及相关干预措施的指标制定的5个关键领域包括:(1)制定标准化定义并确保其采用;(2)完善影响信息疫情负担的概念图;(3)对证据、工具和数据源进行审查;(4)成立一个技术工作组;(5)处理大流行后恢复和恢复力建设的紧迫优先事项。总结报告整合了小组意见,形成了一个通用词汇表,其中包括标准化术语、概念、研究设计、措施和工具,以估计信息疫情的负担和信息疫情管理干预措施的有效性。

结论

标准化测量是记录紧急情况下信息疫情对卫生系统和人群健康负担的基础。需要投资开发实用、经济、基于证据且系统的方法,这些方法在法律和伦理上保持平衡,用于监测信息疫情;生成诊断、信息疫情洞察和建议;以及为信息疫情管理人员和应急项目管理人员制定干预措施、面向行动的指南、政策、支持选项及机制和工具。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索