Complejo Hospitalario Universitario Insular Materno Infantil (CHUIMI), Servicio Canario de Salud (SCS), Las Palmas, Canary Islands, Spain.
Unidad de Apoyo a la Investigación, Complejo Hospitalario Universitario Insular Materno Infantil (CHUIMI), Servicio Canario de Salud (SCS), Departamento de Enfermería, Facultad de Ciencias de la Salud, Universidad de Las Palmas de Gran Canaria (ULPGC), Las Palmas, Canary Islands, Spain.
Enferm Clin (Engl Ed). 2023 May-Jun;33(3):184-194. doi: 10.1016/j.enfcle.2023.01.001. Epub 2023 Apr 5.
To explore the elements involved in the process of paediatric palliative home care in the Spanish context according to the opinion of professionals.
Qualitative study based on Grounded Theory, adjusted to COREQ standards, using theoretical sampling with in-depth interviews (June 2021-February 2022) with paediatricians, paediatric nurses and social workers from paediatric palliative care units in Spain, excluding professionals with less than 1 years' experience. Interviews were recorded and transcribed literally for coding and categorisation through a constant comparative process of code co-occurrence until data saturation using Atlas-Ti®. The anonymity of the informants has been guaranteed by using pseudonyms after approval by the Research Ethics Committee of the Hospital Universitario de Gran Canaria Doctor Negrín (Las Palmas, Canary Islands) with registration number 2021-403-1.
18 interviews were conducted and 990 quotes were grouped into 22 categories of analysis and structured into four thematic groups (care, environment, patient and family, and professionals). The findings showed a holistic view emphasising the need to organise and integrate the factors involved in the home-based approach to paediatric palliative home care.
In our context, the home environment meets appropriate conditions for the development of paediatric palliative care. The categories of analysis identified establish a starting point for further deepening the approach from the thematic areas involved: care, the environment, the patient and family, and professionals.
根据专业人士的意见，探讨西班牙儿科姑息治疗家庭护理过程中的要素。
基于扎根理论的定性研究，根据 COREQ 标准进行调整，使用理论抽样进行深入访谈（2021 年 6 月至 2022 年 2 月），受访者为西班牙儿科姑息治疗单位的儿科医生、儿科护士和社会工作者，不包括经验不足 1 年的专业人员。访谈进行了录音，并逐字逐句地转录，以便通过代码共同出现的不断比较过程进行编码和分类，直到使用 Atlas-Ti®达到数据饱和。在获得医院伦理委员会（大加那利岛拉斯帕尔马斯的尼尼奥博士大学医院）的批准后，使用化名保证了信息提供者的匿名性，注册号为 2021-403-1。
进行了 18 次访谈，共收集了 990 条引语，分为 22 个分析类别，并分为四个主题组（护理、环境、患者和家庭以及专业人员）。研究结果显示了一种整体观点，强调需要组织和整合家庭为基础的儿科姑息治疗方法所涉及的因素。
在我们的背景下，家庭环境为儿科姑息治疗的发展提供了适当的条件。确定的分析类别为进一步从涉及的主题领域（护理、环境、患者和家庭以及专业人员）深入探讨方法提供了一个起点。
