School of Psychology, Faculty of Science, The University of Sydney, Chris O'Brien Lifehouse Level 6 (North), C39Z, 2006, Sydney, NSW, Australia.
Psycho-oncology Co-operative Research Group, School of Psychology, Faculty of Science, The University of Sydney, Sydney, NSW, Australia.
BMC Med Inform Decis Mak. 2023 Apr 6;23(1):65. doi: 10.1186/s12911-023-02146-y.
Despite high rates of mental health disorders among cancer patients, uptake of referral to psycho-oncology services remains low. This study aims to develop and seek clinician and patient feedback on a patient decision aid (PDA) for cancer patients making decisions about treatment for anxiety and/or depression.
Development was informed by the International Patient Decision Aid Standards and the Ottawa Decision Support Framework. Psycho-oncology professionals provided feedback on the clinical accuracy, acceptability, and usability of a prototype PDA. Cognitive interviews with 21 cancer patients/survivors assessed comprehensibility, acceptability, and usefulness. Interviews were thematically analysed using Framework Analysis.
Clinicians and patients strongly endorsed the PDA. Clinicians suggested minor amendments to improve clarity and increase engagement. Patient feedback focused on clarifying the purpose of the PDA and improving the clarity of the values clarification exercises (VCEs).
The PDA, the first of its kind for psycho-oncology, was acceptable to clinicians and patients. Valuable feedback was obtained for the revision of the PDA and VCEs.
尽管癌症患者的心理健康障碍发生率很高，但寻求心理肿瘤学服务的比例仍然很低。本研究旨在为癌症患者制定并寻求临床医生和患者对焦虑和/或抑郁治疗决策的患者决策辅助工具（PDA）的反馈。
开发工作以国际患者决策辅助工具标准和渥太华决策支持框架为指导。心理肿瘤学专业人员对原型 PDA 的临床准确性、可接受性和可用性提供了反馈。对 21 名癌症患者/幸存者进行认知访谈，以评估其可理解性、可接受性和有用性。使用框架分析对访谈进行主题分析。
临床医生和患者强烈支持 PDA。临床医生建议进行一些小的修改以提高清晰度并增加参与度。患者的反馈集中在澄清 PDA 的目的和提高价值观澄清练习（VCE）的清晰度上。
该 PDA 是心理肿瘤学领域的首创，得到了临床医生和患者的认可。为 PDA 和 VCE 的修订获得了有价值的反馈。
