Maguire Erin, Hong Paul, Ritchie Krista, Meier Jeremy, Archibald Karen, Chorney Jill
Faculty of Medicine, Dalhousie University, Halifax, NS, Canada.
IWK Health Centre, Halifax, NS, Canada.
J Otolaryngol Head Neck Surg. 2016 Nov 4;45(1):57. doi: 10.1186/s40463-016-0170-2.
To describe the process involved in developing a decision aid prototype for parents considering adenotonsillectomy for their children with sleep disordered breathing.
A paper-based decision aid prototype was developed using the framework proposed by the International Patient Decision Aids Standards Collaborative. The decision aid focused on two main treatment options: watchful waiting and adenotonsillectomy. Usability was assessed with parents of pediatric patients and providers with qualitative content analysis of semi-structured interviews, which included open-ended user feedback.
A steering committee composed of key stakeholders was assembled. A needs assessment was then performed, which confirmed the need for a decision support tool. A decision aid prototype was developed and modified based on semi-structured qualitative interviews and a scoping literature review. The prototype provided information on the condition, risk and benefits of treatments, and values clarification. The prototype underwent three cycles of accessibility, feasibility, and comprehensibility testing, incorporating feedback from all stakeholders to develop the final decision aid prototype.
A standardized, iterative methodology was used to develop a decision aid prototype for parents considering adenotonsillectomy for their children with sleep disordered breathing. The decision aid prototype appeared feasible, acceptable and comprehensible, and may serve as an effective means of improving shared decision-making.
描述为考虑为患有睡眠呼吸障碍的孩子进行腺样体扁桃体切除术的家长开发决策辅助工具原型所涉及的过程。
使用国际患者决策辅助工具标准协作组织提出的框架开发了一个纸质决策辅助工具原型。该决策辅助工具聚焦于两种主要治疗选择：观察等待和腺样体扁桃体切除术。通过对儿科患者家长和医疗服务提供者进行半结构化访谈，并采用定性内容分析来评估可用性，其中包括开放式用户反馈。
组建了一个由关键利益相关者组成的指导委员会。随后进行了需求评估，证实了对决策支持工具的需求。基于半结构化定性访谈和范围界定文献综述，开发并修改了决策辅助工具原型。该原型提供了有关病情、治疗风险和益处以及价值观澄清的信息。该原型经历了三个周期的可及性、可行性和可理解性测试，纳入了所有利益相关者的反馈以开发最终的决策辅助工具原型。
采用标准化的迭代方法为考虑为患有睡眠呼吸障碍的孩子进行腺样体扁桃体切除术的家长开发了一个决策辅助工具原型。该决策辅助工具原型似乎可行、可接受且易于理解，并可能作为改善共同决策的有效手段。
