在欧洲 COVID-19 大流行期间，缺乏自由预测残疾儿童的家庭照顾者自我报告的健康状况较差。
Lack of freedom predicted poor self-reported health among family caregivers of children with disabilities during the COVID-19 pandemic in Europe.
机构信息
Department of Nursing Science, University of Eastern Finland, Kuopio, Finland.
Institute of Public Health and Clinical Nutrition, University of Eastern Finland, Kuopio, Finland.
出版信息
Nurs Open. 2023 Aug;10(8):5177-5184. doi: 10.1002/nop2.1753. Epub 2023 Apr 10.
AIM
We aim to assess the effects of the COVID-19 pandemic on self-reported health and quality of life among family caregivers of children with disabilities across Europe.
DESIGN
Cross-sectional study.
METHODS
Data from the survey by the Eurocarers and IRCCS-INRCA were used. The data were collected between November 2020 and March 2021 from 16 European countries. Data analysis was done using regression analysis to identify family caregivers' self-reported health and well-being predictors.
RESULTS
This study included 289 caregivers. The mean age of children was 12 years. Their family caregiver's mean age was 44, and they were mainly women. Experience of lack of freedom predicted family caregivers' poor self-reported health and quality of life. Children's interrupted health and social services also predicted family caregivers' poor self-reported mental well-being. Longitudinal evidence on the pandemic's effects and a diverse view of family caregivers of children with disabilities are needed to plan effective post-pandemic health services and nursing practice. No Patient or Public Contribution.
目的
我们旨在评估 COVID-19 大流行对欧洲残疾儿童家庭照顾者自报健康和生活质量的影响。
设计
横断面研究。
方法
使用 Eurocarers 和 IRCCS-INRCA 调查的数据。数据于 2020 年 11 月至 2021 年 3 月期间从 16 个欧洲国家收集。使用回归分析进行数据分析，以确定家庭照顾者自报健康和幸福感的预测因素。
结果
本研究纳入了 289 名照顾者。儿童的平均年龄为 12 岁。他们的家庭照顾者的平均年龄为 44 岁，主要是女性。缺乏自由的体验预测了家庭照顾者自报的健康状况不佳和生活质量下降。儿童健康和社会服务中断也预测了家庭照顾者自报的心理健康不佳。需要对大流行的影响进行纵向证据和残疾儿童家庭照顾者的多样化观点，以便为有效的大流行后卫生服务和护理实践做出计划。无患者或公众贡献。
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