National Institutes of Health, Office of Research on Women's Health, Bethesda, Maryland, USA.
Booz Allen Hamilton, McLean, Virginia, USA.
J Womens Health (Larchmt). 2023 Jun;32(6):625-634. doi: 10.1089/jwh.2022.0488. Epub 2023 Apr 11.
To assist with planning a congressionally requested conference on women's health research, the National Institutes of Health (NIH) Office of Research on Women's Health (ORWH) invited comments to characterize public concerns related to any or all of the specified public health issues: maternal morbidity and mortality (MMM); stagnant rates of cervical cancer survival; and the growing incidence of chronic debilitating conditions in women (CDCW). This analysis summarizes public priorities in women's health research. All comments received in response to a request for information were open coded and a master list of keywords was created, and comments were categorized. Comments addressing CDCW were categorized using a conceptual framework developed by the NIH. Two hundred forty-seven comments were coded and analyzed. One hundred four comments (42%) addressed MMM; 182 comments (73%) discussed CDCW; and 27 comments (10%) addressed cervical cancer. Comments focused on CDCW most frequently addressed female-specific conditions (83%). The 10 most frequently identified keywords in order of frequency from the manual coding were as follows: (1) MMM, (2) racial disparities, (3) access to care, (4) provider training, (5) mental health, (6) Black or African American women, (7) screening, (8) quality of care, (9) time to diagnosis, and (10) social determinants of health. Comments demonstrate a broad range of concerns related to the health of women, including MMM, CDCW, and cervical cancer. A wide array of commenters included patients, advocacy groups, and academic and professional organizations originating from geographically diverse locations. These comments reflect a strong desire from the public to prioritize research on the health of women.
为协助规划国会要求的妇女健康研究会议，美国国立卫生研究院（NIH）妇女健康研究办公室（ORWH）邀请公众对以下特定公共卫生问题的任何或所有问题表示关注：孕产妇发病率和死亡率（MMM）；宫颈癌生存率停滞不前；以及妇女慢性衰弱性疾病（CDCW）的发病率不断上升。本分析总结了妇女健康研究的公众优先事项。所有针对信息请求的回复意见均进行了开放式编码，并创建了关键字总列表，并对意见进行了分类。使用 NIH 制定的概念框架对涉及 CCDCW 的意见进行了分类。对 247 条意见进行了编码和分析。有 104 条意见（42%）涉及 MMM；182 条意见（73%）讨论了 CCDCW；27 条意见（10%）涉及宫颈癌。关注 CCDCW 的意见最常涉及女性特有的疾病（83%）。按手动编码的频率从高到低，排名前十的关键字如下：（1）MMM，（2）种族差异，（3）获得医疗服务，（4）提供者培训，（5）心理健康，（6）黑人和非裔美国妇女，（7）筛查，（8）医疗质量，（9）诊断时间，（10）健康的社会决定因素。这些意见表明，公众对妇女健康问题存在广泛关注，包括 MMM、CCDW 和宫颈癌。从地域上看，意见的来源非常广泛，包括患者、倡导团体以及学术和专业组织。这些意见反映了公众对优先研究妇女健康的强烈愿望。
