Rho Mi Jung, Park Jihwan
College of Health Science, Dankook University, Cheonan-si, Republic of Korea.
Department of Computer Education, Dankook Liberal Art College, Dankook University, Cheonan-si, Chungcheongnam-do, Republic of Korea.
JMIR Form Res. 2023 Apr 12;7:e40660. doi: 10.2196/40660.
Distributed research networks (DRNs) offer researchers the advantage of using various big data sets that are difficult to access and use. In addition, since the data are not physically exposed to the outside, it is possible to conduct research using medical data safely without data exposure. However, researchers still have difficulties and are concerned about using DRNs. Few studies involving DRNs have been conducted from the user's viewpoint. Therefore, it is necessary to look at DRNs from the researcher's point of view and find ways to facilitate the active use of DRNs.
This study aimed to identify the factors that made researchers hesitate to use DRNs and to derive a method to facilitate active DRN use.
We conducted a web-based survey of people working in the medical fields, such as hospitals and universities. We used 131 respondents' data from a survey from December 6 to 17, 2021. We conducted multiple regression analyses to determine the factors affecting the postponement of using DRNs. In addition, 2 independent sample t tests were conducted to analyze the difference between the 2 groups according to the following factors: organization, gender, experience with DRNs, length of the research career, position, and age.
Performance risk (t=2.725, P=.007) and workload from DRNs (t=3.543, P=.001) were significantly associated with users' postponement of DRN use. Researchers working at hospitals were found to feel more burdened by DRN use than researchers working at universities (t=1.975, P=.05). It was also found that women perceived a higher privacy risk of DRNs than men (t=-2.303, P=.02) and that those who had experience using DRNs delayed their use less than those without experience (t=-4.215, P<.001).
It is necessary to simplify the research and approval processes to reduce the performance risk and workload of research using DRNs. To optimize the process, DRN providers should develop a way to improve users' experiences. More user-friendly functionalities should be developed from the researcher's point of view. It is necessary to continuously promote effective functionalities for DRNs to reduce concerns about privacy risks. This study identified the concerns of DRN users in terms of DRN use and suggested ways to actively use DRNs. The derived results can be reflected in planning and developing DRNs. Our research will be helpful to prepare an activation plan for DRNs.
分布式研究网络(DRN)为研究人员提供了使用各种难以获取和利用的大数据集的优势。此外,由于数据不会实际暴露于外部,因此可以安全地使用医疗数据进行研究而不会导致数据泄露。然而,研究人员在使用DRN时仍然存在困难并有所顾虑。从用户角度开展的涉及DRN的研究很少。因此,有必要从研究人员的角度审视DRN,并找到促进其积极使用的方法。
本研究旨在确定导致研究人员对使用DRN犹豫不决的因素,并推导出促进DRN积极使用的方法。
我们对医院和大学等医疗领域的工作人员进行了一项基于网络的调查。我们使用了2021年12月6日至17日一项调查中131名受访者的数据。我们进行了多元回归分析,以确定影响推迟使用DRN的因素。此外,根据组织、性别、DRN使用经验、研究职业生涯时长、职位和年龄等因素,进行了2次独立样本t检验,以分析两组之间的差异。
性能风险(t=2.725,P=0.007)和来自DRN的工作量(t=3.543,P=0.001)与用户推迟使用DRN显著相关。发现医院的研究人员比大学的研究人员在使用DRN时感觉负担更重(t=1.975,P=0.05)。还发现女性认为DRN的隐私风险高于男性(t=-2.303,P=0.02),并且有DRN使用经验的人比没有经验的人推迟使用的情况更少(t=-4.215,P<0.001)。
有必要简化研究和审批流程,以降低使用DRN进行研究的性能风险和工作量。为了优化流程,DRN提供商应开发一种改善用户体验的方法。应从研究人员的角度开发更用户友好的功能。有必要持续推广DRN的有效功能,以减少对隐私风险的担忧。本研究确定了DRN用户在使用DRN方面的顾虑,并提出了积极使用DRN的方法。得出的结果可反映在DRN的规划和开发中。我们的研究将有助于制定DRN的激活计划。