Department of Obstetrics and Gynecology, University of Utah School of Medicine, 30N 1900 E, Suite 2B200, Salt Lake City, UT 84132, USA.
Department of Obstetrics and Gynecology, University of Utah School of Medicine, 30N 1900 E, Suite 2B200, Salt Lake City, UT 84132, USA.
Patient Educ Couns. 2023 Jul;112:107746. doi: 10.1016/j.pec.2023.107746. Epub 2023 Apr 11.
To understand the postmortem decision-making needs and preferences of parents of a stillborn.
A qualitative content analysis was conducted. Patients who received stillbirth care at the University of Utah in the last 5 years, were 18 years of age or older, and English speakers, were invited to participate via an email and follow-up phone call. Participants were interviewed about their experiences, values, beliefs, decision-making experience regarding the postmortem examinations of their stillborn, and suggestions for how to assist their decision-making needs.
Nineteen participants who consented to one or more postmortem examination of their stillborn were interviewed. They expressed needing information, altruism, and/or a belief in science as reasons for consenting. The most common reason for declining was already knowing the stillbirth cause. Recommendations for a decision aid included a description of all stillbirth evaluation options, risks and benefits, and a timeline.
Participants had a variety of reasons for consenting to or declining postmortem examinations of their stillborn. Recommendations for a decision aid include a full description of each examination, the risks and benefits, and a timeline.
An example decision aid was created from recommendations, which presents balanced information to help support couple's decision-making.
了解胎死腹中父母的死后决策需求和偏好。
采用定性内容分析法。邀请过去 5 年在犹他大学接受胎死护理、年龄在 18 岁及以上且为英语使用者的患者通过电子邮件和后续电话参与。对参与者进行了关于其经历、价值观、信仰、对其胎死的死后检查的决策经验以及如何满足其决策需求的建议的采访。
采访了 19 名同意对其胎死进行一次或多次死后检查的参与者。他们表示同意的原因是需要信息、利他主义和/或对科学的信仰。拒绝的最常见原因是已经知道胎死的原因。关于决策辅助工具的建议包括描述所有胎死评估选项、风险和益处以及时间表。
参与者同意或拒绝对其胎死进行死后检查的原因各不相同。决策辅助工具的建议包括对每项检查、风险和益处以及时间表的全面描述。
根据建议创建了一个示例决策辅助工具，提供了平衡的信息，以帮助支持夫妇的决策。
