Cornell University, Ithaca, NY, USA.
Division of General Internal Medicine, Department of Medicine, Weill Cornell Medicine, Box 331, 420 East 70th Street, New York, NY, 10021, USA.
J Cancer Educ. 2023 Oct;38(5):1557-1561. doi: 10.1007/s13187-023-02298-5. Epub 2023 Apr 26.
More than 70% of cancer patients have one or more comorbid conditions, and diabetes is one of the most common and burdensome comorbidities. However, existing patient-centered education materials often fail to acknowledge how to co-manage cancer and diabetes, leaving patients feeling overwhelmed and searching for guidance. Our team sought to fill this knowledge gap by using the Patient Activated Learning System (PALS), a patient-centered, publicly available platform, to generate patient-centered education materials about co-managing diabetes and cancer. Using insights from 15 patient interview transcripts, we developed eight reusable knowledge objects (RKOs) for a variety of common questions that patients have about co-managing diabetes and cancer. The RKOs were written in collaboration with researchers and clinicians and then peer reviewed by experts. The eight evidence-based RKOs have the potential to equip patients with the knowledge to support cancer and diabetes co-management. There are no existing patient-centered educational resources to help patients manage their diabetes during cancer treatments. We filled this gap by using the Patient Activated Learning System (PALS) to generate evidence-based, patient-facing educational information that was written by researchers and clinicians and peer reviewed by experts. This educational content will support cancer and diabetes co-management for patients.
超过 70%的癌症患者存在一种或多种合并症,而糖尿病是最常见和负担最重的合并症之一。然而,现有的以患者为中心的教育材料往往未能认识到如何共同管理癌症和糖尿病,这让患者感到不知所措,寻找指导。我们的团队试图通过使用以患者为中心、公开可用的平台——患者激活学习系统(Patient Activated Learning System,简称 PALS)来填补这一知识空白,生成关于共同管理糖尿病和癌症的以患者为中心的教育材料。我们从 15 份患者访谈记录中获取了见解,为患者共同管理糖尿病和癌症时经常提出的各种常见问题开发了 8 个可重复使用的知识对象(Reusable Knowledge Objects,简称 RKO)。这些 RKO 是与研究人员和临床医生合作编写的,然后由专家进行同行评审。这 8 个基于证据的 RKO 有可能为患者提供支持癌症和糖尿病共同管理的知识。目前没有以患者为中心的教育资源来帮助患者在癌症治疗期间管理他们的糖尿病。我们通过使用患者激活学习系统(PALS)生成由研究人员和临床医生编写、专家进行同行评审的基于证据的、面向患者的教育信息来填补这一空白。这些教育内容将为患者的癌症和糖尿病共同管理提供支持。