Perinatal Palliative Care, Women's Palliative Care Service, Department of Gynaecological Oncology, KK Women's and Children's Hospital, Singapore, Singapore.
Duke-NUS Medical School, Singapore, Singapore.
Palliat Med. 2023 Oct;37(9):1379-1388. doi: 10.1177/02692163231171182. Epub 2023 May 3.
Despite the diagnosis of life-limiting foetal conditions, some mothers choose to continue their pregnancies. The experiences of these individuals are relatively unknown, making it difficult for perinatal palliative services to be targeted towards their needs.
To examine maternal experiences in perinatal palliative care among those who choose to continue their pregnancies despite life-limiting foetal condition.
Qualitative, retrospective study involving semi-structured interviews. Braun & Clarke's reflexive thematic analyses using a constructionist-interpretive approach were conducted.
SETTING/PARTICIPANTS: A total of 15 adult women participants who decided to continue their pregnancies after learning of life-limiting foetal diagnoses were recruited from a Singaporean tertiary hospital. Interviews were conducted in-person or via video conferencing.
Seven themes were synthesized from the data: (1) Internal upheaval - 'World turns upside down'; (2) Role of religion and spirituality in hope of miracles; (3) Support from family and close friends; (4) Navigating a fragmented healthcare system; (5) Value added by the perinatal palliative service; (6) Goodbye and grieving and (7) No regrets and other personal reflections.
Continuing a pregnancy despite the diagnosis of a life-limiting foetal condition can be challenging for mothers. To better meet their needs during this difficult period, perinatal palliative care must be patient-centred, multidisciplinary and non-judgmental. Efforts must be made to streamline the healthcare delivery process.
尽管胎儿存在生命限制的诊断，但仍有一些母亲选择继续妊娠。这些个体的经历相对未知，这使得围产期姑息治疗服务难以满足他们的需求。
探讨那些选择继续妊娠但胎儿存在生命限制的母亲在围产期姑息治疗中的体验。
回顾性定性研究，包括半结构化访谈。采用建构主义解释方法的 Braun & Clarke 反思性主题分析。
地点/参与者：从新加坡一家三级医院招募了 15 名成年女性参与者，她们在得知胎儿存在生命限制的诊断后决定继续妊娠。访谈通过面对面或视频会议进行。
从数据中综合出七个主题：（1）内心动荡-“世界天翻地覆”；（2）宗教和精神在期待奇迹中的作用；（3）来自家人和亲密朋友的支持；（4）应对支离破碎的医疗保健系统；（5）围产期姑息治疗服务的增值；（6）道别和悲伤；（7）不后悔和其他个人反思。
尽管胎儿存在生命限制的诊断，但继续妊娠对母亲来说可能具有挑战性。为了在这个困难时期更好地满足她们的需求，围产期姑息治疗必须以患者为中心、多学科和非评判性的方式提供。必须努力简化医疗保健提供过程。
