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围产期沟通中的伦理问题。

Ethical issues in perinatal communication.

作者信息

Turchiano F, Romiti A, Tudisco R, Bisanti M, Polsinelli V, Penza V, Salvi S, Lanzone A

机构信息

Obstetrics and Obstetrical Pathology Unit, Department of Women's and Child Health and Public Health Sciences, Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome, Italy.

Obstetrics and Gynecological Unit, Department of Women's and Child Health and Public Health Sciences, Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome, Italy.

出版信息

Eur J Pediatr. 2024 Dec 26;184(1):106. doi: 10.1007/s00431-024-05928-2.

DOI:10.1007/s00431-024-05928-2
PMID:39724206
Abstract

UNLABELLED

Advancements in neonatal critical care continue, enhancing perinatal communication is essential to address the bioethical challenges faced. In perinatal care, various life-limiting or life-threatening conditions that address ethical issues can arise, both during the prenatal and postnatal phases. The diagnosis, prognosis, and potential treatment of these conditions significantly influence the lives of both the unborn child and the newborn, thereby directly impacting parental choices and experiences. This review arises from the necessity to highlight the importance of developing a structured framework concerning the critical components of perinatal care, with a specific focus on the pivotal role of communication. A standardized approach is recommended for counseling at the time of diagnosis of critical fetal conditions, to care for the couple and to support their decision making.

CONCLUSIONS

In perinatal critical clinical scenarios, it is imperative that healthcare providers communicate to parents using effective communication strategies, with standardized frameworks. Moreover, integrating perinatal palliative care into the treatment pathway for fetuses with limited life expectancy is essential, within referral centers.

WHAT IS KNOWN

• In perinatal care, different life-limiting or life-threatening conditions that address ethical issues can arise, both during the prenatal and postnatal phases. • The diagnosis, prognosis, and potential treatment of critical fetal and postnatal conditions significantly affect the lives of the child and parents.

WHAT IS NEW

• Communication has a pivotal role concerning the critical components of perinatal care. • A standardized approach is recommended for counseling at the time of diagnosis of critical fetal conditions, to care for the couple and to support their decision making.

摘要

未标注

新生儿重症监护不断取得进展,加强围产期沟通对于应对所面临的生物伦理挑战至关重要。在围产期护理中,无论是产前还是产后阶段,都可能出现各种涉及伦理问题的危及生命或限制生命的情况。这些情况的诊断、预后和潜在治疗方法会显著影响未出生胎儿和新生儿的生命,从而直接影响父母的选择和经历。本综述源于强调制定一个关于围产期护理关键组成部分的结构化框架的重要性的必要性,特别关注沟通的关键作用。建议采用标准化方法在诊断严重胎儿疾病时进行咨询,以照顾夫妇并支持他们的决策。

结论

在围产期危急临床场景中,医疗保健提供者必须使用有效的沟通策略和标准化框架与父母进行沟通。此外,在转诊中心,将围产期姑息治疗纳入预期寿命有限的胎儿的治疗途径至关重要。

已知信息

• 在围产期护理中,产前和产后阶段都可能出现各种涉及伦理问题的危及生命或限制生命的情况。• 严重胎儿和产后疾病的诊断、预后和潜在治疗方法会显著影响儿童和父母的生活。

新内容

• 沟通在围产期护理的关键组成部分中起着关键作用。• 建议采用标准化方法在诊断严重胎儿疾病时进行咨询,以照顾夫妇并支持他们的决策。

相似文献

1
Ethical issues in perinatal communication.围产期沟通中的伦理问题。
Eur J Pediatr. 2024 Dec 26;184(1):106. doi: 10.1007/s00431-024-05928-2.
2
Ethical Considerations in Perinatal Palliative Care.围产期姑息治疗中的伦理考量
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4
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JBI Database System Rev Implement Rep. 2015 Nov;13(11):33-42. doi: 10.11124/jbisrir-2015-2413.
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9
The future of Cochrane Neonatal.考克兰新生儿协作网的未来。
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10
Moving toward a shared process: The impact of parent experiences on perinatal palliative care.迈向共享过程:父母经历对围产期姑息治疗的影响。
Semin Perinatol. 2017 Mar;41(2):95-100. doi: 10.1053/j.semperi.2016.11.002. Epub 2017 Feb 24.

本文引用的文献

1
Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children's palliative care service over 14 years.专科围产期舒缓治疗:对儿童舒缓治疗服务 14 年来的产前转介进行回顾性分析。
BMC Palliat Care. 2023 Nov 10;22(1):177. doi: 10.1186/s12904-023-01302-5.
2
Advance care planning in perinatal settings: national survey of implementation using Normalisation Process Theory.围产期实施预先护理计划:运用常态化进程理论的全国性实施调查。
Arch Dis Child Fetal Neonatal Ed. 2024 Feb 19;109(2):135-142. doi: 10.1136/archdischild-2023-325649.
3
"We All Want to Be Able to Tell You Something Hopeful": Clinicians' Experiences Providing Maternal-Fetal Surgery Counseling.
“我们都希望能告诉你一些充满希望的事情”:临床医生提供母胎手术咨询的经历
Fetal Diagn Ther. 2023;50(5):353-367. doi: 10.1159/000531535. Epub 2023 Jun 14.
4
Understanding the experiences of mothers receiving perinatal palliative care: A qualitative study.理解接受围产期姑息治疗的母亲的体验:一项定性研究。
Palliat Med. 2023 Oct;37(9):1379-1388. doi: 10.1177/02692163231171182. Epub 2023 May 3.
5
Collaboration between Maternal-Fetal Medicine and Neonatology When Counseling at Extreme Prematurity.孕产医学与新生儿学在极早产儿咨询时的协作。
Neoreviews. 2023 Mar 1;24(3):e137-e143. doi: 10.1542/neo.24-3-e137.
6
Infant Maternal Perinatal Advanced Care Team: A Pilot Collaboration for Families Facing a Life-Threatening Fetal Diagnosis.婴幼儿母婴围产期高级护理团队:针对面临危及生命的胎儿诊断的家庭开展的试点合作项目
J Palliat Med. 2023 Jan;26(1):101-105. doi: 10.1089/jpm.2022.0076. Epub 2022 Dec 14.
7
Perinatal Palliative Care Service: Developing a Comprehensive Care Package for Vulnerable Babies with Life Limiting Fetal Conditions.围产期姑息治疗服务:为患有严重胎儿疾病的脆弱婴儿制定综合关怀方案。
J Palliat Care. 2022 Oct;37(4):471-475. doi: 10.1177/08258597211046735. Epub 2021 Oct 12.
8
Outcomes following perinatal palliative care consultation: a retrospective review.围产期姑息治疗咨询的结果:回顾性研究。
J Perinatol. 2021 Sep;41(9):2196-2200. doi: 10.1038/s41372-021-00966-2. Epub 2021 Feb 17.
9
Health-care provider communication with expectant parents during a prenatal diagnosis: an integrative review.产前诊断期间医疗保健提供者与准父母的沟通:一项综合综述。
J Perinatol. 2017 Jan;37(1):2-12. doi: 10.1038/jp.2016.123. Epub 2016 Aug 11.
10
Fatally flawed? A review and ethical analysis of lethal congenital malformations.致命缺陷?对致命性先天性畸形的回顾与伦理分析。
BJOG. 2012 Oct;119(11):1302-8. doi: 10.1111/j.1471-0528.2012.03450.x. Epub 2012 Jul 25.