Department of Urology, University of California San Francisco, San Francisco, California.
Harvard T.H. Chan School of Public Health, Boston, Massachusetts.
Urol Pract. 2022 Jan;9(1):56-63. doi: 10.1097/UPJ.0000000000000275. Epub 2021 Nov 1.
We examined the characteristics and financial outcomes of online crowdfunding campaigns for patients with major urological cancers in the U.S.
This cross-sectional study analyzed publicly available data from GoFundMe, the largest online medical crowdfunding service, via automated web scraping. Online campaigns from 2010 to 2018 with the following primary cancer types were included: kidney, prostate, bladder and testicular. Financial outcomes were compared using Kruskal-Wallis and Wilcoxon rank-sum tests. Multivariable analyses were utilized to identify predictors of campaign financial outcomes.
Kidney cancers were the most frequent online campaign type (478), followed by prostate (379), bladder (202) and testicular (175) malignancies. Urological cancer campaign recipients frequently requested funding for medical expenses (71%) during active treatment (57%). After adjustment, testicular cancer and children's cancer campaigns generated more donations than other urological and adult cancer campaigns (p <0.05). Family and friend-authored campaigns generated more donations and average donation amounts than self-authored campaigns (p <0.05). Campaign narratives focused on disheartening circumstances received fewer donations than narratives focused on the recipient's high moral character or contributions to society (p <0.05), and unclear narratives received the smallest donation amounts (p <0.05).
Urological cancer crowdfunding in the U.S. is primarily used to finance uncovered costs associated with medical care during active treatment. Crowdfunding financial outcomes are likely related to the campaign recipient's age, malignancy type, social network and primary appeal of the narrative. Urologists should be aware of trends in medical crowdfunding in order to better understand the financial burden this patient population faces.
本研究旨在分析美国主要泌尿系统癌症患者线上众筹活动的特征和财务结果。
本横断面研究通过自动化网络爬虫程序分析了美国最大的线上医疗众筹服务平台 GoFundMe 上公开的可用数据。纳入的研究对象为 2010 年至 2018 年间具有以下主要癌症类型的患者:肾脏、前列腺、膀胱和睾丸。使用 Kruskal-Wallis 和 Wilcoxon 秩和检验比较财务结果。利用多变量分析确定影响众筹财务结果的预测因子。
线上众筹活动中最常见的癌症类型是肾脏癌(478 例),其次是前列腺癌(379 例)、膀胱癌(202 例)和睾丸癌(175 例)。在活动治疗期间,泌尿系统癌症众筹活动的参与者经常请求资助医疗费用(71%)。调整后,睾丸癌和儿童癌症的筹款活动比其他泌尿系统和成人癌症的筹款活动获得了更多的捐款(p<0.05)。与自我撰写的活动叙述相比,家庭成员和朋友撰写的活动叙述获得了更多的捐款和平均捐款金额(p<0.05)。聚焦于令人沮丧的情况的活动叙述比聚焦于筹款对象高尚品德或对社会贡献的活动叙述收到的捐款较少(p<0.05),且不清楚的活动叙述收到的捐款最少(p<0.05)。
美国泌尿系统癌症的众筹主要用于支付活动治疗期间未涵盖的医疗费用。众筹的财务结果可能与活动接受者的年龄、恶性肿瘤类型、社交网络和叙述的主要诉求有关。泌尿科医生应该了解医疗众筹的趋势,以便更好地了解患者群体所面临的经济负担。