Rajwa Pawel, Hopen Philip, Wojnarowicz Jakub, Kaletka Julia, Paszkiewicz Iga, Lach-Wojnarowicz Olga, Mostafaei Hadi, Krajewski Wojciech, D'Andrea David, Małkiewicz Bartosz, Paradysz Andrzej, Ploussard Guillaume, Moschini Marco, Breyer Benjamin N, Pradere Benjamin, Shariat Shahrokh F, Leapman Michael S
Department of Urology, Medical University of Vienna, 1090 Vienna, Austria.
Department of Urology, Medical University of Silesia, 41-800 Zabrze, Poland.
Cancers (Basel). 2022 Aug 25;14(17):4104. doi: 10.3390/cancers14174104.
Background: we aimed to characterize the financial needs expressed through online crowdfunding for urologic cancers. Methods: the data used in this study came from the online crowdfunding platform GoFundMe.com. Using an automated software method, we extracted data for campaigns related to urologic cancers. Subsequently, four independent investigators reviewed all extracted data on prostate, bladder, kidney and testicular cancer. We analyzed campaigns’ basic characteristics, goals, fundraising, type of treatment and factors associated with successful campaigns. Results: in total, we identified 2126 individual campaigns, which were related to direct treatment costs (34%), living expenses (17%) or both (48%). Median fundraising amounts were greatest for testicular cancer. Campaigns for both complementary and alternative medicine (CAM) (median $11,000) or CAM alone (median $8527) achieved higher fundraising totals compared with those for conventional treatments alone (median $5362) (p < 0.01). The number of social media shares was independently associated with campaign success and highest quartile of fundraising. Conclusions: using an automated web-based approach, we identified and characterized online crowdfunding for urologic cancer care. These findings indicated a diverse range of patient needs related to urologic care and factors related to campaigns’ success.
我们旨在描述通过在线众筹表达的泌尿系统癌症的资金需求。方法：本研究中使用的数据来自在线众筹平台GoFundMe.com。我们采用自动化软件方法，提取了与泌尿系统癌症相关活动的数据。随后，四名独立研究人员审查了所有提取的关于前列腺癌、膀胱癌、肾癌和睾丸癌的数据。我们分析了活动的基本特征、目标、筹款情况、治疗类型以及与成功活动相关的因素。结果：我们总共识别出2126个单独的活动，这些活动与直接治疗费用（34%）、生活费用（17%）或两者都有关（48%）。睾丸癌的中位数筹款金额最高。与仅采用传统治疗的活动（中位数为5362美元）相比，采用补充和替代医学（CAM）的活动（中位数为11,000美元）或仅采用CAM的活动（中位数为8527美元）实现了更高的筹款总额（p < 0.01）。社交媒体分享次数与活动成功以及筹款的最高四分位数独立相关。结论：通过基于网络的自动化方法，我们识别并描述了用于泌尿系统癌症护理的在线众筹情况。这些发现表明与泌尿系统护理相关的患者需求范围广泛，以及与活动成功相关的因素。
